
Cliquez sur les titres de pays ci-dessous pour obtenir les informations de test et de traitement correspondantes concernant Alpha-1.
EUROPE
Austria
Are free A-1 tests available? Yes
Are serum level tests available? Yes
Are genotyping tests available? Not known
Are phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? Yes
Which augmentation therapy products are available? Prolastin
How is augmentation therapy reimbursed? Public health insurance
Are A-1 treatment centers available? No
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes
Are free A-1 tests available? Unavailable
Are serum level tests available? Unavailable
Are genotyping tests available? Unavailable
Are phenotyping or pi-typing tests available? Unavailable
Is augmentation therapy available? Unavailable
Which augmentation therapy products are available? Unavailable
How is augmentation therapy reimbursed? Unavailable
Are A-1 treatment centers available? Unavailable
Is supplemental oxygen available? Unavailable
Are respiratory medications available? Unavailable
Is pulmonary rehabilitation available? Unavailable
Is Genetic counseling available? Unavailable
Are free A-1 tests available? No
Are Alpha-1 serum level tests available? Yes
Are Alpha-1 genotyping tests available? Yes
Are Alpha-1 phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? No
Which augmentation therapy products are available? None
How is augmentation therapy reimbursed? Not reimbursed
Are Alpha-1 specialists or care treatment centers available? Yes
Is supplemental oxygen available? Yes (and oxygen therapy under certain conditions)
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available by a trained counselor? Yes
Does your country have an Alpha-1 patient registered charity or NGO (non-government organisation)? Yes
The following imaging tests are available for Alpha-1 patients: CT imaging, liver ultrasounds, liver fibroscans, liver biopsy
Does your country have a national Alpha-1 Registry? If you are in Europe, does your country have a national registry apart from EARCO? Yes
Are free A-1 tests available? Unavailable
Are serum level tests available? Unavailable
Are genotyping tests available? Unavailable
Are phenotyping or pi-typing tests available? Unavailable
Is augmentation therapy available? Unavailable
Which augmentation therapy products are available? Unavailable
How is augmentation therapy reimbursed? Unavailable
Are A-1 treatment centers available? Unavailable
Is supplemental oxygen available? Unavailable
Are respiratory medications available? Unavailable
Is pulmonary rehabilitation available? Unavailable
Is Genetic counseling available? Unavailable
Are free A-1 tests available? No
Are serum level tests available? Yes; in most biochemical laboratories
Are genotyping tests available? No; full genotyping is not available
Are phenotyping or pi-typing tests available? Yes; we routinely use testing of M, Z and S allels
Is augmentation therapy available? Yes
Which augmentation therapy products are available? Respreeza
How is augmentation therapy reimbursed? Unavailable
Are A-1 treatment centers available? Yes; but only one
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes.
Are free A-1 tests available? Yes
Are serum level tests available? Yes
Are genotyping tests available? Yes
Are phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? Yes
Are A-1 treatment centers available? No
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes
Are free A-1 tests available? Unavailable
Are serum level tests available? Unavailable
Are genotyping tests available? Unavailable
Are phenotyping or pi-typing tests available? Unavailable
Is augmentation therapy available? Unavailable
Which augmentation therapy products are available? Unavailable
How is augmentation therapy reimbursed? Unavailable
Are A-1 treatment centers available? Unavailable
Is supplemental oxygen available? Unavailable
Are respiratory medications available? Unavailable
Is pulmonary rehabilitation available? Unavailable
Is Genetic counseling available? Unavailable
Are free A-1 tests available? Unavailable
Are serum level tests available? Unavailable
Are genotyping tests available? Unavailable
Are phenotyping or pi-typing tests available? Unavailable
Is augmentation therapy available? Unavailable
Which augmentation therapy products are available? Unavailable
How is augmentation therapy reimbursed? Unavailable
Are A-1 treatment centers available? Unavailable
Is supplemental oxygen available? Unavailable
Are respiratory medications available? Unavailable
Is pulmonary rehabilitation available? Unavailable
Is Genetic counseling available? Unavailable
Are free A-1 tests available? Yes
Are serum level tests available? Yes
Are genotyping tests available? Yes
Are phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? Yes
Which augmentation therapy products are available? Alfalastin
How is augmentation therapy reimbursed? Public health insurance
Are A-1 treatment centers available? No
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes
Are free A-1 tests available? Yes
Are Alpha-1 serum level tests available? Yes
Are Alpha-1 genotyping tests available? Yes
Are Alpha-1 phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? Yes
Which augmentation therapy products are available? Prolastin and Respreeza
How is Alpha-1 augmentation therapy administered? Self-administered, administered by a medical professional, in home
How is augmentation therapy reimbursed? Public and private health insurance
Are Alpha-1 specialists and care treatment centers available? Yes
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available by a trained counselor? Yes
Does your country have an Alpha-1 patient registered charity or NGO (non-government organisation)? Yes
The following imaging tests are available to Alpha-1 patients: CT imaging, liver ultrasound, liver fibroscan, liver biopsy
Does your country have a national Alpha-1 Registry? If you are in Europe, does your country have a national registry apart from EARCO? Yes
Are free A-1 tests available? Yes; your doctor must contact the company that imports the augmentation treatment.
Are serum level tests available? Not known
Are genotyping tests available? Not known
Are phenotyping or pi-typing tests available? No
Is augmentation therapy available? Yes
Which augmentation therapy products are available? Prolastin
How is augmentation therapy reimbursed? It is covered by most insurance funds without patient contribution
Are A-1 treatment centers available? No
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes
Are free A-1 tests available? Unavailable
Are serum level tests available? Unavailable
Are genotyping tests available? Unavailable
Are phenotyping or pi-typing tests available? Unavailable
Is augmentation therapy available? Unavailable
Which augmentation therapy products are available? Unavailable
How is augmentation therapy reimbursed? Unavailable
Are A-1 treatment centers available? Unavailable
Is supplemental oxygen available? Unavailable
Are respiratory medications available? Unavailable
Is pulmonary rehabilitation available? Unavailable
Is Genetic counseling available? Unavailable
Are free Alpha-1 tests available? Yes
Are Alpha-1 serum level tests available? Yes
Are Alpha-1 genotyping tests available? Yes
Are phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? No
Which augmentation therapy products are available? Not available
How is augmentation therapy reimbursed? Not reimbursed
Are Alpha-1 specialists or care treatment centers available? Yes
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available by a trained counselor? Unavailable
Does your country have an Alpha-1 patient registered charity or NGO (non-government organisation)? Yes
The following imaging tests are available to Alpha-1 patients: CT Imaging, Liver Ultrasound, Liver Fibroscan, Liver Biopsy
Does your country have a national Alpha-1 registry? If you are in Europe, does your country have a national registry apart from EARCO? Yes
Are free A-1 tests available? Yes
Are serum level tests available? Yes
Are genotyping tests available? Yes
Are phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? Yes
Which augmentation therapy products are available? Prolastin, Prolastin-C, Respreeza
How is augmentation therapy administered? By medical professional or in hospital
How is augmentation therapy reimbursed? National Health Service
Are A-1 specialists or care treatment centers available? Yes
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available by a trained counselor? Yes
Does your country have an Alpha-1 patient registered charity or NGO (Non-government organisation)? Yes
The following imaging tests are available to Alpha-1 patients: CT Imaging, Liver Ultrasound, Liver Fibroscan, Liver biopsy
Does this country have a national Alpha-1 Registry apart from EARCO? Yes
Are free A-1 tests available? Yes; if patient has clinical signs of disease and health insurance.
Are serum level tests available? Yes
Are genotyping tests available? Yes
Are phenotyping or pi-typing tests available? No
Is augmentation therapy available? No
Are A-1 treatment centers available? No; only general pulmonology departments at university hospitals.
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes
Are free A-1 tests available? Information is currently not available
Are serum level tests available? Information is currently not available
Are genotyping tests available? Not known
Are phenotyping or pi-typing tests available? Information is currently not available
Is augmentation therapy available? Information is currently not available
Which augmentation therapy products are available? Information is currently not available
How is augmentation therapy reimbursed? Information is currently not available
Are A-1 treatment centers available? Information is currently not available
Is supplemental oxygen available? Information is currently not available
Are respiratory medications available? Information is currently not available
Is pulmonary rehabilitation available? Information is currently not available
Is Genetic counseling available? Information is currently not available
Are free A-1 tests available? No
Are serum level tests available? Yes
Are genotyping tests available? Yes
Are phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? No
Are A-1 treatment centers available? No, however, will be in the future if treatment becomes reimbursable.
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes
Are free A-1 tests available? Yes; only in certain cities/hospitals
Are serum level tests available? Yes
Are genotyping tests available? Yes
Are phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? No
Are A-1 treatment centers available? No
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Not known
Is Genetic counseling available? Not Known
Are free A-1 tests available? Yes
Are serum level tests available? Yes
Are genotyping tests available? Yes
Are phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? Yes
Which augmentation therapy products are available? Prolastin
How is augmentation therapy reimbursed? It is not Public and/or private health insurance
Are A-1 treatment centers available? Yes; take care of clinical diagnostics, pharmacotherapy and follow up, but not augmentation
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes though not huge regional differences
Is Genetic counseling available? Yes
Are free A-1 tests available? No
Are serum level tests available? Yes
Are genotyping tests available? Yes
Are phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? Yes
Which augmentation therapy products are available? Prolastin
How is augmentation therapy reimbursed? Public health insurance
Are A-1 treatment centers available? No
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes; in some hospitals
Are free A-1 tests available? Yes
Are serum level tests available? Yes
Are genotyping tests available? Yes
Are phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? No
Are A-1 treatment centers available? Yes; take care of clinical diagnostics, pharmacotherapy and follow up, but not augmentation therapy
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes; but only in two centers
Is Genetic counseling available? Yes
Are free A-1 tests available? Unavailable
Are serum level tests available? Unavailable
Are genotyping tests available? Unavailable
Are phenotyping or pi-typing tests available? Unavailable
Is augmentation therapy available? Unavailable
Which augmentation therapy products are available? Unavailable
How is augmentation therapy reimbursed? Unavailable
Are A-1 treatment centers available? Unavailable
Is supplemental oxygen available? Unavailable
Are respiratory medications available? Unavailable
Is pulmonary rehabilitation available? Unavailable
Is Genetic counseling available? Unavailable
Are free A-1 tests available? Yes
Are serum level tests available? Yes
Are genotyping tests available? Yes
Are phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? Yes
Which augmentation therapy products are available? Prolastin & Trypsone
How is augmentation therapy reimbursed? Public health insurance
Are A-1 treatment centers available? No
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes
Are free A-1 tests available? Yes; and only in certain cities/hospitals
Are serum level tests available? Yes; and only in certain cities/hospitals
Are genotyping tests available? Yes; and only in certain cities/hospitals
Are phenotyping or pi-typing tests available? Yes; and only in certain cities/hospitals
Is augmentation therapy available? No
How is augmentation therapy reimbursed? Public and private health insurance
Are A-1 treatment centers available? No
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes
Are free A-1 tests available? Yes
Are serum level tests available? Yes
Are genotyping tests available? Yes
Are phenotyping or pi-typing tests available? Yes
Is Genetic testing available? Yes
Is augmentation therapy available? Yes
Which augmentation therapy products are available? Prolastin and Respreeza
How is augmentation therapy reimbursed? Public health insurance
Are A-1 treatment centers available? Yes several
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes several
Is Genetic counseling available? Yes
Are free A-1 tests available? Unavailable
Are serum level tests available? Unavailable
Are genotyping tests available? Unavailable
Are phenotyping or pi-typing tests available? Unavailable
Is augmentation therapy available? Unavailable
Which augmentation therapy products are available? Unavailable
How is augmentation therapy reimbursed? Unavailable
Are A-1 treatment centers available? Unavailable
Is supplemental oxygen available? Unavailable
Are respiratory medications available? Unavailable
Is pulmonary rehabilitation available? Unavailable
Is Genetic counseling available? Unavailable
Are free A-1 tests available? Yes
Are serum level tests available? Yes
Are genotyping tests available? Not known
Are phenotyping or pi-typing tests available? Not known
Is augmentation therapy available? No
Are A-1 treatment centers available? No
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes; in some places
LATIN AMERICA
Argentina
Are free A-1 tests available? Not known
Are serum level tests available? Not known
Are genotyping tests available? Not Known
Are phenotyping or pi-typing tests available? Not known
Is augmentation therapy available? Yes
Which augmentation therapy products are available?Prolastin, Prolastin-C, Trypsone, and Aralast
How is augmentation therapy reimbursed? Public and private health insurance
Are A-1 treatment centers available? Yes; in Buenos Aires
Is supplemental oxygen available? Not known
Are respiratory medications available? Not known
Is pulmonary rehabilitation available? Not known
Is Genetic counseling available? Yes
Are free A-1 tests available? Yes
Are serum level tests available? Yes; but only in certain cities/hospitals
Are genotyping tests available? Yes
Are phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? Yes
Which augmentation therapy products are available? Zamaira, Glassia, Trypsone
How is augmentation therapy reimbursed? Public health insurance
Are A-1 treatment centers available? No
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes; limited to certain regions
Are free A-1 tests available? Unavailable
Are serum level tests available? Unavailable
Are genotyping tests available? Unavailable
Are phenotyping or pi-typing tests available? Unavailable
Is augmentation therapy available? Unavailable
Which augmentation therapy products are available? Unavailable
How is augmentation therapy reimbursed? Unavailable
Are A-1 treatment centers available? Unavailable
Is supplemental oxygen available? Unavailable
Are respiratory medications available? Unavailable
Is pulmonary rehabilitation available? Unavailable
Is Genetic counseling available? Unavailable
Are free A-1 tests available? No
Are serum level tests available? Yes
Are genotyping tests available? No
Are phenotyping or pi-typing tests available? No
Is augmentation therapy available? Yes
Which augmentation therapy products are available? Prolastin
How is augmentation therapy reimbursed? Not Known
Are A-1 treatment centers available? No
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? No
Are free A-1 tests available? Unavailable
Are serum level tests available? Unavailable
Are genotyping tests available? Unavailable
Are phenotyping or pi-typing tests available? Unavailable
Is augmentation therapy available? Unavailable
Which augmentation therapy products are available? Unavailable
How is augmentation therapy reimbursed? Unavailable
Are A-1 treatment centers available? Unavailable
Is supplemental oxygen available? Unavailable
Are respiratory medications available? Unavailable
Is pulmonary rehabilitation available? Unavailable
Is Genetic counseling available? Unavailable
Are free A-1 tests available? No
Are Alpha-1 serum level tests available? Yes
Are Alpha-1 genotyping tests available? Yes
Are Alpha-1 phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? Yes
How is augmentation therapy administered? Self-administered
Which augmentation therapy products are available? Zemaira
How is augmentation therapy reimbursed? Private Insurance
Are Alpha-1 specialists or care treatment centers available? Unavailable
Is supplemental oxygen available? Available
Are respiratory medications available? Available
Is pulmonary rehabilitation available? Available
Is Genetic counseling available by a trained counselor? Available
The following imaging tests are available to Alpha-1 patients: C T imaging, liver ultrasound, liver fiberscan, liver biopsy
Does your country have a national Alpha-1 Registry? Not Known
Are free A-1 tests available? Unavailable
Are serum level tests available? Unavailable
Are genotyping tests available? Unavailable
Are phenotyping or pi-typing tests available? Unavailable
Is augmentation therapy available? Unavailable
Which augmentation therapy products are available? Unavailable
How is augmentation therapy reimbursed? Unavailable
Are A-1 treatment centers available? Unavailable
Is supplemental oxygen available? Unavailable
Are respiratory medications available? Unavailable
Is pulmonary rehabilitation available? Unavailable
Is Genetic counseling available? Unavailable
Are free A-1 tests available? Yes; at some physician offices
Are serum level tests available? Yes
Are genotyping tests available? Yes
Are phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? Yes
Which augmentation therapy products are available? Prolastin-C, Zemaira, Aralast
How is augmentation therapy reimbursed? Medicare and private health insurance
Are A-1 treatment centers available? No
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes
Are free A-1 tests available? Unavailable
Are serum level tests available? Unavailable
Are genotyping tests available? Unavailable
Are phenotyping or pi-typing tests available? Unavailable
Is augmentation therapy available? Unavailable
Which augmentation therapy products are available? Unavailable
How is augmentation therapy reimbursed? Unavailable
Are A-1 treatment centers available? Unavailable
Is supplemental oxygen available? Unavailable
Are respiratory medications available? Unavailable
Is pulmonary rehabilitation available? Unavailable
Is Genetic counseling available? Unavailable
MIDDLE EAST
Israel
Are free A-1 tests available? Unavailable
Are serum level tests available? Unavailable
Are genotyping tests available? Unavailable
Are phenotyping or pi-typing tests available? Unavailable
Is augmentation therapy available? Unavailable
Which augmentation therapy products are available? Unavailable
How is augmentation therapy reimbursed? Unavailable
Are A-1 treatment centers available? Unavailable
Is supplemental oxygen available? Unavailable
Are respiratory medications available? Unavailable
Is pulmonary rehabilitation available? Unavailable
Is Genetic counseling available? Unavailable
Are free A-1 tests available? Information is currently not available
Are serum level tests available? Information is currently not available
Are genotyping tests available? Information is currently not available
Are phenotyping or pi-typing tests available? Information is currently not available
Is augmentation therapy available? Information is currently not available
Which augmentation therapy products are available? Information is currently not available
How is augmentation therapy reimbursed? Information is currently not available
Are A-1 treatment centers available? Information is currently not available
Is supplemental oxygen available? Information is currently not available
Are respiratory medications available? Information is currently not available
Is pulmonary rehabilitation available? Information is currently not available
Is Genetic counseling available? Yes
Are free Alpha-1 tests available? No
Are Alpha-1 serum level tests available? Yes
Are Alpha-1 genotyping tests available? No
Are phenotyping or pi-typing tests available? No
Is augmentation therapy available? Yes
Which augmentation therapy products are available? Prolastin-C
How is augmentation therapy administered in your country? In hospital
How is augmentation therapy reimbursed? Public Insurance
Are Alpha-1 specialists and care treatment centers available? Available
Is supplemental oxygen available? Available
Are respiratory medications available? Available
Is pulmonary rehabilitation available? Available
Is Genetic counseling available by a trained counselor? Not known
Does your country have an Alpha-1 patient registered charity or NGO (non-government organisation)? No
The following imaging tests are available to Alpha-1 patients: CT imaging, liver ultrasound, liver biopsy
Does your country have a national Alpha-1 registry? If you are in Europe, does your country have a national registry apart from EARCO? Yes
NORTH AMERICA
Canada
Are free A-1 tests available? Yes
Are Alpha-1 serum level tests available? Yes
Are Alpha-1 genotyping tests available? Yes
Are Alpha-1 phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? Yes
Which augmentation therapy products are available? Prolastin-C
How is augmentation therapy administered? Administered by a medical professional in a home setting or community infusion clinic
How is augmentation therapy reimbursed? Public health insurance, private health insurance, partially reimbursed, or not reimbursed
Are Alpha-1 specialists or care treatment centers available? Yes
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available by a trained counselor? Yes
Does your country have a patient registered charity or NGO (non-government organisation)? Yes
The following imaging tests are available to Alpha-1 patients: CT Imaging, liver ultrasounds, liver fibroscan, liver biopsy
Does your country have a national Alpha-1 registry?: Yes
Are free A-1 tests available? Yes
Are serum level tests available? Yes
Are genotyping tests available? Not known
Are phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? Yes
Which augmentation therapy products are available? Prolastin-C, Zemaira, Aralast
How is augmentation therapy reimbursed? Public and private health insurance
Are A-1 treatment centers available? Yes
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes
SOUTH AFRICA
South Africa
Are free A-1 tests available? Unavailable
Are Alpha-1 serum level tests available? Yes
Are Alpha-1 genotyping tests available? Yes
Are Alpha-1 phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? No
Which augmentation therapy products are available? Glassia; only available via a section 21 application but no medical insurance cover
How is Alpha-1 augmentation therapy administered? In any medical facility (typically doctor’s premise)
How is augmentation therapy reimbursed? Not reimbursed
Are Alpha-1 specialists or care treatment centers available? Available
Is supplemental oxygen available? Available
Are respiratory medications available? Available
Is pulmonary rehabilitation available? Available
Is Genetic counseling available by a trained counselor? Not known
Does your country have an Alpha-1 patient registered charity or NGO (non-government organisation)? No
The following imaging tests are available to Alpha-1 patients: CT imaging, liver ultrasound, liver fibroscan, liver biopsy
Does your country have a national Alpha-1 registry? No
SOUTH PACIFIC
Australia
Are free A-1 tests available? Yes
Are serum level tests available? Yes
Are genotyping tests available? Yes
Are phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? Yes, at patient’s expense
Which augmentation therapy products are available? Zemaira by CSL Behring, and Prolastin-C by Grifols
How is augmentation therapy reimbursed? Augmentation therapy expense is not currently reimbursed by the Australian government.
Are Alpha-1 specialists and care treatment centers available? No
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available by a trained counselor? Yes
Does your country have an Alpha-1 patient registered charity or NGO (non-government organisation)? Yes
Does your country have a national Alpha-1 registry? No
Are free A-1 tests available? Yes
Are serum level tests available? Yes
Are genotyping tests available? Yes
Are phenotyping or pi-typing tests available? Not known
Is augmentation therapy available? No
Are A-1 treatment centers available? No
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes