Alpha 1 Global

Nuestro objetivo es desarrollar una red global de colaboración entre los directivos de asociaciones de pacientes, médicos e investigadores vinculados al Alfa-1, para incrementar la concienciación, detección y acceso a atención médica de los alfas en todo el mundo.

Acceso Mundial A La Atención Médica


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Haga clic en la títulos del país correspondiente para obtener información sobre pruebas y tratamiento de Alfa-1.

EUROPE


Austria

Are free A-1 tests available?   YesAustria

Are serum level tests available?   Yes

Are genotyping tests available?   Not known

Are phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Prolastin

How is augmentation therapy reimbursed?   Public health insurance

Are A-1 treatment centers available?   No

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   Yes

Belarus

Are free A-1 tests available?   Unavailablebelarus

Are serum level tests available?   Unavailable

Are genotyping tests available?  Unavailable

Are phenotyping or pi-typing tests available?   Unavailable

Is augmentation therapy available?   Unavailable

Which augmentation therapy products are available?   Unavailable

How is augmentation therapy reimbursed?   Unavailable

Are A-1 treatment centers available?   Unavailable

Is supplemental oxygen available?   Unavailable

Are respiratory medications available?   Unavailable

Is pulmonary rehabilitation available?   Unavailable

Is Genetic counseling available?   Unavailable

Belgium

Are free A-1 tests available?   Nobelgium

Are Alpha-1 serum level tests available?   Yes

Are Alpha-1 genotyping tests available?   Yes

Are Alpha-1 phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   No

Which augmentation therapy products are available?   None

How is augmentation therapy reimbursed?  Not reimbursed 

Are Alpha-1 specialists or care treatment centers available?   Yes

Is supplemental oxygen available?   Yes (and oxygen therapy under certain conditions)

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available by a trained counselor?   Yes

Does your country have an Alpha-1 patient registered charity or NGO (non-government organisation)?   Yes

The following imaging tests are available for Alpha-1 patients:  CT imaging, liver ultrasounds, liver fibroscans, liver biopsy 

Does your country have a national Alpha-1 Registry? If you are in Europe, does your country have a national registry apart from EARCO?   Yes

Bulgaria

Are free A-1 tests available?   Unavailablebulgaria

Are serum level tests available?   Unavailable

Are genotyping tests available?  Unavailable

Are phenotyping or pi-typing tests available?   Unavailable

Is augmentation therapy available?   Unavailable

Which augmentation therapy products are available?   Unavailable

How is augmentation therapy reimbursed?   Unavailable

Are A-1 treatment centers available?   Unavailable

Is supplemental oxygen available?   Unavailable

Are respiratory medications available?   Unavailable

Is pulmonary rehabilitation available?   Unavailable

Is Genetic counseling available?   Unavailable

Czech Republic

Are free A-1 tests available?   Noczech-republic

Are serum level tests available?   Yes; in most biochemical laboratories

Are genotyping tests available?   No; full genotyping is not available

Are phenotyping or pi-typing tests available?   Yes; we routinely use testing of M, Z and S allels

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Respreeza

How is augmentation therapy reimbursed?   Unavailable

Are A-1 treatment centers available?   Yes; but only one

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   Yes.

Denmark

Are free A-1 tests available?   Yesdanmark

Are serum level tests available?   Yes

Are genotyping tests available?  Yes

Are phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   Yes

Are A-1 treatment centers available?   No

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   Yes

Estonia

Are free A-1 tests available?   Unavailableestonia

Are serum level tests available?   Unavailable

Are genotyping tests available?  Unavailable

Are phenotyping or pi-typing tests available?   Unavailable

Is augmentation therapy available?   Unavailable

Which augmentation therapy products are available?   Unavailable

How is augmentation therapy reimbursed?   Unavailable

Are A-1 treatment centers available?   Unavailable

Is supplemental oxygen available?   Unavailable

Are respiratory medications available?   Unavailable

Is pulmonary rehabilitation available?   Unavailable

Is Genetic counseling available?   Unavailable

Finland

Are free A-1 tests available?   Unavailablefinland

Are serum level tests available?   Unavailable

Are genotyping tests available?  Unavailable

Are phenotyping or pi-typing tests available?   Unavailable

Is augmentation therapy available?   Unavailable

Which augmentation therapy products are available?   Unavailable

How is augmentation therapy reimbursed?   Unavailable

Are A-1 treatment centers available?   Unavailable

Is supplemental oxygen available?   Unavailable

Are respiratory medications available?   Unavailable

Is pulmonary rehabilitation available?   Unavailable

Is Genetic counseling available?   Unavailable

France

Are free A-1 tests available?   Yesfrance

Are serum level tests available?   Yes

Are genotyping tests available?  Yes

Are phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Alfalastin

How is augmentation therapy reimbursed?   Public health insurance

Are A-1 treatment centers available?   No

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   Yes

Germany

Are free A-1 tests available?   Yesgermany

Are Alpha-1 serum level tests available?   Yes

Are Alpha-1 genotyping tests available?  Yes

Are Alpha-1 phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Prolastin and Respreeza

How is Alpha-1 augmentation therapy administered?   Self-administered, administered by a medical professional, in home 

How is augmentation therapy reimbursed?   Public and private health insurance

Are Alpha-1 specialists and care treatment centers available?   Yes

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available by a trained counselor?   Yes

Does your country have an Alpha-1 patient registered charity or NGO (non-government organisation)?   Yes

The following imaging tests are available to Alpha-1 patients:   CT imaging, liver ultrasound, liver fibroscan, liver biopsy

Does your country have a national Alpha-1 Registry? If you are in Europe, does your country have a national registry apart from EARCO?  Yes

Greece

Are free A-1 tests available?   Yes; your doctor must contact the company that imports the augmentation treatment.greece

Are serum level tests available?   Not known

Are genotyping tests available?   Not known

Are phenotyping or pi-typing tests available?   No

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Prolastin

How is augmentation therapy reimbursed?   It is covered by most insurance funds without patient contribution

Are A-1 treatment centers available?   No

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   Yes

Iceland

Are free A-1 tests available?   Unavailableiceland

Are serum level tests available?   Unavailable

Are genotyping tests available?  Unavailable

Are phenotyping or pi-typing tests available?   Unavailable

Is augmentation therapy available?   Unavailable

Which augmentation therapy products are available?   Unavailable

How is augmentation therapy reimbursed?   Unavailable

Are A-1 treatment centers available?   Unavailable

Is supplemental oxygen available?   Unavailable

Are respiratory medications available?   Unavailable

Is pulmonary rehabilitation available?   Unavailable

Is Genetic counseling available?   Unavailable

Ireland

Are free Alpha-1 tests available?   Yesireland

Are Alpha-1 serum level tests available?   Yes

Are Alpha-1 genotyping tests available?  Yes

Are phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   No

Which augmentation therapy products are available?   Not available

How is augmentation therapy reimbursed?   Not reimbursed

Are Alpha-1 specialists or care treatment centers available?   Yes

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available by a trained counselor?   Unavailable

Does your country have an Alpha-1 patient registered charity or NGO (non-government organisation)?   Yes

The following imaging tests are available to Alpha-1 patients:   CT Imaging, Liver Ultrasound, Liver Fibroscan, Liver Biopsy 

Does your country have a national Alpha-1 registry? If you are in Europe, does your country have a national registry apart from EARCO? Yes

Italy

Are free A-1 tests available?   Yes

Are serum level tests available?   Yesitaly

Are genotyping tests available?  Yes

Are phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Prolastin, Prolastin-C, Respreeza

How is augmentation therapy administered?   By medical professional or in hospital

How is augmentation therapy reimbursed?   National Health Service

Are A-1 specialists or care treatment centers available?   Yes

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available by a trained counselor?   Yes

Does your country have an Alpha-1 patient registered charity or NGO (Non-government organisation)?   Yes

The following imaging tests are available to Alpha-1 patients:   CT Imaging, Liver Ultrasound, Liver Fibroscan, Liver biopsy 

Does this country have a national Alpha-1 Registry apart from EARCO?   Yes

Lithuania

Are free A-1 tests available?   Yes; if patient has clinical signs of disease and health insurance.lithuania

Are serum level tests available?   Yes

Are genotyping tests available?  Yes

Are phenotyping or pi-typing tests available?   No

Is augmentation therapy available?   No

Are A-1 treatment centers available?   No; only general pulmonology departments at university hospitals.

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   Yes

Luxembourg

Are free A-1 tests available?   Information is currently not availableluxembourg

Are serum level tests available?   Information is currently not available

Are genotyping tests available?   Not known

Are phenotyping or pi-typing tests available?   Information is currently not available

Is augmentation therapy available?   Information is currently not available

Which augmentation therapy products are available?   Information is currently not available

 How is augmentation therapy reimbursed?   Information is currently not available

Are A-1 treatment centers available?   Information is currently not available

Is supplemental oxygen available?   Information is currently not available

Are respiratory medications available?   Information is currently not available

Is pulmonary rehabilitation available?   Information is currently not available

Is Genetic counseling available?   Information is currently not available

Netherlands

Are free A-1 tests available?   Nonetherlands

Are serum level tests available?   Yes

Are genotyping tests available?  Yes

Are phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   No

Are A-1 treatment centers available?   No, however, will be in the future if treatment becomes reimbursable.

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   Yes

Norway

Are free A-1 tests available?   Yes; only in certain cities/hospitalsnorway

Are serum level tests available?   Yes

Are genotyping tests available?  Yes

Are phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   No

Are A-1 treatment centers available?   No

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Not known

Is Genetic counseling available?   Not Known

Poland

Are free A-1 tests available?   Yespoland

Are serum level tests available?   Yes

Are genotyping tests available?  Yes

Are phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Prolastin

How is augmentation therapy reimbursed?   It is not Public and/or private health insurance

Are A-1 treatment centers available?   Yes; take care of clinical diagnostics, pharmacotherapy and follow up, but not augmentation

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes though not huge regional differences

Is Genetic counseling available?   Yes

Portugal

Are free A-1 tests available?   Noportugal

Are serum level tests available?   Yes

Are genotyping tests available?  Yes

Are phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Prolastin

How is augmentation therapy reimbursed?   Public health insurance

Are A-1 treatment centers available?   No

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   Yes; in some hospitals

Romania

Are free A-1 tests available?   Yesromania

Are serum level tests available?   Yes

Are genotyping tests available?  Yes

Are phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   No

Are A-1 treatment centers available?   Yes; take care of clinical diagnostics, pharmacotherapy and follow up, but not augmentation therapy

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes; but only in two centers

Is Genetic counseling available?   Yes

Russia

Are free A-1 tests available?   Unavailablerussia

Are serum level tests available?   Unavailable

Are genotyping tests available?  Unavailable

Are phenotyping or pi-typing tests available?   Unavailable

Is augmentation therapy available?   Unavailable

Which augmentation therapy products are available?   Unavailable

How is augmentation therapy reimbursed?   Unavailable

Are A-1 treatment centers available?   Unavailable

Is supplemental oxygen available?   Unavailable

Are respiratory medications available?   Unavailable

Is pulmonary rehabilitation available?   Unavailable

Is Genetic counseling available?   Unavailable

Spain

Are free A-1 tests available?   Yesspain

Are serum level tests available?   Yes

Are genotyping tests available?   Yes

Are phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Prolastin & Trypsone

How is augmentation therapy reimbursed?   Public health insurance

Are A-1 treatment centers available?   No

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   Yes

Sweden

Are free A-1 tests available?   Yes; and only in certain cities/hospitalssweden

Are serum level tests available?   Yes; and only in certain cities/hospitals

Are genotyping tests available?   Yes; and only in certain cities/hospitals

Are phenotyping or pi-typing tests available?   Yes; and only in certain cities/hospitals

Is augmentation therapy available?   No

How is augmentation therapy reimbursed?   Public and private health insurance

Are A-1 treatment centers available?   No

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   Yes

Switzerland

Are free A-1 tests available?   Yesswitzerland

Are serum level tests available?   Yes

Are genotyping tests available?   Yes

Are phenotyping or pi-typing tests available?   Yes

Is Genetic testing available?  Yes

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Prolastin and Respreeza

How is augmentation therapy reimbursed?   Public health insurance

Are A-1 treatment centers available?   Yes several

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes several

Is Genetic counseling available?   Yes

Ukraine

Are free A-1 tests available?   Unavailableukraine

Are serum level tests available?   Unavailable

Are genotyping tests available?  Unavailable

Are phenotyping or pi-typing tests available?   Unavailable

Is augmentation therapy available?   Unavailable

Which augmentation therapy products are available?   Unavailable

How is augmentation therapy reimbursed?   Unavailable

Are A-1 treatment centers available?   Unavailable

Is supplemental oxygen available?   Unavailable

Are respiratory medications available?   Unavailable

Is pulmonary rehabilitation available?   Unavailable

Is Genetic counseling available?   Unavailable

United Kingdom

Are free A-1 tests available?   Yesunited-kingdom

Are serum level tests available?   Yes

Are genotyping tests available?  Not known

Are phenotyping or pi-typing tests available?   Not known

Is augmentation therapy available?   No

Are A-1 treatment centers available?   No

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   Yes; in some places

LATIN AMERICA


Argentina

Are free A-1 tests available?   Not knownargentina

Are serum level tests available?   Not known

Are genotyping tests available?   Not Known

Are phenotyping or pi-typing tests available?   Not known

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?Prolastin, Prolastin-C, Trypsone, and Aralast

How is augmentation therapy reimbursed?   Public and private health insurance

Are A-1 treatment centers available?   Yes; in Buenos Aires

Is supplemental oxygen available?   Not known

Are respiratory medications available?   Not known

Is pulmonary rehabilitation available?   Not known

Is Genetic counseling available?   Yes

Brasil

Are free A-1 tests available?   YesBrazil

Are serum level tests available?   Yes; but only in certain cities/hospitals

Are genotyping tests available?  Yes

Are phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Zamaira, Glassia, Trypsone

How is augmentation therapy reimbursed?   Public health insurance

Are A-1 treatment centers available?   No

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   Yes; limited to certain regions

Chile

Are free A-1 tests available?   Unavailablechile

Are serum level tests available?   Unavailable

Are genotyping tests available?  Unavailable

Are phenotyping or pi-typing tests available?   Unavailable

Is augmentation therapy available?   Unavailable

Which augmentation therapy products are available?   Unavailable

How is augmentation therapy reimbursed?   Unavailable

Are A-1 treatment centers available?   Unavailable

Is supplemental oxygen available?   Unavailable

Are respiratory medications available?   Unavailable

Is pulmonary rehabilitation available?   Unavailable

Is Genetic counseling available?   Unavailable

Colombia

Are free A-1 tests available?   Nocolombia

Are serum level tests available?   Yes

Are genotyping tests available?   No

Are phenotyping or pi-typing tests available?   No

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Prolastin

How is augmentation therapy reimbursed?   Not Known

Are A-1 treatment centers available?   No

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   No

Costa Rica

Are free A-1 tests available?   Unavailablecosta-rica

Are serum level tests available?   Unavailable

Are genotyping tests available?  Unavailable

Are phenotyping or pi-typing tests available?   Unavailable

Is augmentation therapy available?   Unavailable

Which augmentation therapy products are available?   Unavailable

How is augmentation therapy reimbursed?   Unavailable

Are A-1 treatment centers available?   Unavailable

Is supplemental oxygen available?   Unavailable

Are respiratory medications available?   Unavailable

Is pulmonary rehabilitation available?   Unavailable

Is Genetic counseling available?   Unavailable

Mexico

Are free A-1 tests available?   No

Are Alpha-1 serum level tests available?   Yes

Are Alpha-1 genotyping tests available?  Yes

Are Alpha-1 phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   Yes

How is augmentation therapy administered?   Self-administered

Which augmentation therapy products are available?   Zemaira

How is augmentation therapy reimbursed?   Private Insurance

Are Alpha-1 specialists or care treatment centers available?   Unavailable

Is supplemental oxygen available?   Available

Are respiratory medications available?   Available

Is pulmonary rehabilitation available?   Available

Is Genetic counseling available by a trained counselor?   Available

The following imaging tests are available to Alpha-1 patients:  C T imaging, liver ultrasound, liver fiberscan, liver biopsy 

Does your country have a national Alpha-1 Registry? Not Known

Panama

Are free A-1 tests available?   Unavailablepanama

Are serum level tests available?   Unavailable

Are genotyping tests available?  Unavailable

Are phenotyping or pi-typing tests available?   Unavailable

Is augmentation therapy available?   Unavailable

Which augmentation therapy products are available?   Unavailable

How is augmentation therapy reimbursed?   Unavailable

Are A-1 treatment centers available?   Unavailable

Is supplemental oxygen available?   Unavailable

Are respiratory medications available?   Unavailable

Is pulmonary rehabilitation available?   Unavailable

Is Genetic counseling available?   Unavailable

Puerto Rico

Are free A-1 tests available?   Yes; at some physician officespuerto-rico

Are serum level tests available?   Yes

Are genotyping tests available?  Yes

Are phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Prolastin-C, Zemaira, Aralast

How is augmentation therapy reimbursed?   Medicare and private health insurance

Are A-1 treatment centers available?   No

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   Yes

Uruguay

Are free A-1 tests available?   Unavailableuruguay

Are serum level tests available?   Unavailable

Are genotyping tests available?  Unavailable

Are phenotyping or pi-typing tests available?   Unavailable

Is augmentation therapy available?   Unavailable

Which augmentation therapy products are available?   Unavailable

How is augmentation therapy reimbursed?   Unavailable

Are A-1 treatment centers available?   Unavailable

Is supplemental oxygen available?   Unavailable

Are respiratory medications available?   Unavailable

Is pulmonary rehabilitation available?   Unavailable

Is Genetic counseling available?   Unavailable

MIDDLE EAST


Israel

Are free A-1 tests available?   Unavailableisrael

Are serum level tests available?   Unavailable

Are genotyping tests available?  Unavailable

Are phenotyping or pi-typing tests available?   Unavailable

Is augmentation therapy available?   Unavailable

Which augmentation therapy products are available?   Unavailable

How is augmentation therapy reimbursed?   Unavailable

Are A-1 treatment centers available?   Unavailable

Is supplemental oxygen available?   Unavailable

Are respiratory medications available?   Unavailable

Is pulmonary rehabilitation available?   Unavailable

Is Genetic counseling available?   Unavailable

Lebanon

Are free A-1 tests available?   Information is currently not availablelebanon

Are serum level tests available?   Information is currently not available

Are genotyping tests available?   Information is currently not available

Are phenotyping or pi-typing tests available?   Information is currently not available

Is augmentation therapy available?   Information is currently not available

Which augmentation therapy products are available?   Information is currently not available

How is augmentation therapy reimbursed?   Information is currently not available

Are A-1 treatment centers available?   Information is currently not available

Is supplemental oxygen available?   Information is currently not available

Are respiratory medications available?   Information is currently not available

Is pulmonary rehabilitation available?   Information is currently not available

Is Genetic counseling available?   Yes

Turkey

Are free Alpha-1 tests available?   No

Are Alpha-1 serum level tests available?   Yes

Are Alpha-1 genotyping tests available?   No

Are phenotyping or pi-typing tests available?   No

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Prolastin-C

How is augmentation therapy administered in your country?   In hospital

How is augmentation therapy reimbursed?   Public Insurance

Are Alpha-1 specialists and care treatment centers available?   Available

Is supplemental oxygen available?   Available

Are respiratory medications available?   Available

Is pulmonary rehabilitation available?   Available

Is Genetic counseling available by a trained counselor?   Not known

Does your country have an Alpha-1 patient registered charity or NGO (non-government organisation)?   No

The following imaging tests are available to Alpha-1 patients: CT imaging, liver ultrasound, liver biopsy 

Does your country have a national Alpha-1 registry? If you are in Europe, does your country have a national registry apart from EARCO? Yes

NORTH AMERICA


Canada

Are free A-1 tests available?   Yescanada

Are Alpha-1 serum level tests available?   Yes

Are Alpha-1 genotyping tests available?  Yes

Are Alpha-1 phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Prolastin-C

How is augmentation therapy administered?   Administered by a medical professional in a home setting or community infusion clinic

How is augmentation therapy reimbursed?   Public health insurance, private health insurance, partially reimbursed, or not reimbursed

Are Alpha-1 specialists or care treatment centers available?   Yes

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available by a trained counselor?   Yes

Does your country have a patient registered charity or NGO (non-government organisation)?   Yes

The following imaging tests are available to Alpha-1 patients: CT Imaging, liver ultrasounds, liver fibroscan, liver biopsy 

Does your country have a national Alpha-1 registry?: Yes

United States of America

Are free A-1 tests available?   Yesunited-states-of-america

Are serum level tests available?   Yes

Are genotyping tests available?   Not known

Are phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Prolastin-C, Zemaira, Aralast

How is augmentation therapy reimbursed?   Public and private health insurance

Are A-1 treatment centers available?   Yes

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   Yes

SOUTH AFRICA


South Africa

Are free A-1 tests available?   Unavailablesouth-africa

Are Alpha-1 serum level tests available?   Yes

Are Alpha-1 genotyping tests available?   Yes

Are Alpha-1 phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   No

Which augmentation therapy products are available?   Glassia; only available via a section 21 application but no medical insurance cover

How is Alpha-1 augmentation therapy administered?  In any medical facility (typically doctor’s premise) 

How is augmentation therapy reimbursed?   Not reimbursed

Are Alpha-1 specialists or care treatment centers available?   Available

Is supplemental oxygen available?   Available

Are respiratory medications available?   Available

Is pulmonary rehabilitation available?   Available

Is Genetic counseling available by a trained counselor?   Not known

Does your country have an Alpha-1 patient registered charity or NGO (non-government organisation)?  No

The following imaging tests are available to Alpha-1 patients:   CT imaging, liver ultrasound, liver fibroscan, liver biopsy

Does your country have a national Alpha-1 registry?  No

SOUTH PACIFIC


Australia

Are free A-1 tests available?   Yesaustralia

Are serum level tests available?   Yes

Are genotyping tests available?  Yes

Are phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   Yes, at patient’s expense

Which augmentation therapy products are available?   Zemaira by CSL Behring, and Prolastin-C by Grifols

How is augmentation therapy reimbursed?   Augmentation therapy expense is not currently reimbursed by the Australian government.

Are Alpha-1 specialists and care treatment centers available?   No

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available by a trained counselor?   Yes

Does your country have an Alpha-1 patient registered charity or NGO (non-government organisation)? Yes

Does your country have a national Alpha-1 registry? No

New Zealand

Are free A-1 tests available?   Yesnew-zealand

Are serum level tests available?   Yes

Are genotyping tests available?  Yes

Are phenotyping or pi-typing tests available?   Not known

Is augmentation therapy available?   No

Are A-1 treatment centers available?   No

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   Yes



Alpha-1 Around The Globe

Click on the country flags below to learn more about country specific contact and general information, access to care, and available resources

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