Welcome to the UK Alpha-1 page.
Two patient organisation are active in the United Kingdom:
More Information Coming Soon
Access to care
Are free A-1 tests available? Yes
Are serum level tests available? Yes
Are genotyping tests available? Not known
Are phenotyping or pi-typing tests available? Not known
Is augmentation therapy available? No
Are A-1 treatment centers available? No
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes; in some places
EDUCATIONAL
What is Alpha-1?
Am I an Alpha-1 Carrier
The Liver and Alpha-1
Family Testing
Recently Diagnosed
how to Find an Alpha Doctor
Genetic Counseling for Patients
End of Life Care
Skinny Little Reference Guide
Big Fat Reference Guide
Air Travel Poster (available in 10 languages)
VIDEO: What Is Alpha-1?
HEALTHCARE PROVIDER
Healthcare Providers
Genetic Counseling for Healthcare Providers
Rule It Out
RESEARCH
Research Registry
Alpha-1 Coded Testing (ACT) Study
2015 Research Registry Questionnaire
Research Registry Newsletter
ADVOCACY
Advocacy Toolkit
ENGLISH