Alpha 1 Global

Our mission is to develop a collaborative global network of Alpha-1 patient leaders, physicians, and researchers, to increase awareness, detection, and access to care for Alphas around the world.


Kamada Applies to Market Inhaled Alpha-1 Therapy in Europe

Kamada has submitted a Marketing Authorization Application with the European Medicines Agency (EMA), seeking permission to market its inhaled therapy for Alpha-1 Antitrypsin Deficiency in …

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Conference to Address Ethical Issues in Rare Disease Research

People with rare diseases such as Alpha-1 deserve treatments that are proven to be safe and effective. Christine Grady, PhD (Photo) But unlike more common …

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Issue #4 Alpha-1 Global Community eNews

To view Issue #4 of the Alpha-1 Global Community eNews, click here.

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Alpha-1 Support Group Leader Educates About the Condition

It’s not what’s there. It’s what isn’t there. Carol Logan displays some of the information she has compiled on Alpha-1. Some people in the United …

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UK Researchers Claim Alpha-1 Developed to Combat Viking Worm Infestations

In the complex world of DNA, a gene that develops to protect a population from one health problem, may later put that same population at …

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Mayo Clinic to Create Lung Restoration Center to Increase the Number of Lungs Available for Transplant

The Mayo Clinic in Jacksonville, Florida and United Therapeutics Corp., a biotechnology company, are working together to create a lung restoration center that they say …

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Alphas Need Fitness Program to Improve Breathing, Says Fitness Trainer Dealing with Her Own Breathing Challenges

Jodi Fillmore was in the best shape of her life more than four years ago when she entered a bodybuilding competition. When the event was …

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Study: Music Therapy Improves COPD Symptoms

A new study has found that patients with chronic obstructive pulmonary disease (COPD) and other chronic respiratory conditions showed signs of improvement in symptoms, psychological …

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Alpha-1 Foundation Scientific, Clinical Directors Edit Book on Alpha-1 for Clinicians and Researchers

A new book edited by two prominent Alpha-1 experts explores the causes and symptoms of the condition, and highlights the role of healthcare organizations in …

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Health Tips for Alphas

For Alphas, the most important way to prevent disease or slow disease progression is avoiding risk factors. The biggest risk factor for lung disease is …

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Alpha-1 Around The Globe

Click on the country flags below to learn more about country specific contact and general information, access to care, and available resources

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