Alpha 1 Global

Our mission is to develop a collaborative global network of Alpha-1 patient leaders, physicians, and researchers, to increase awareness, detection, and access to care for Alphas around the world.

Global Community News

Alpha-1 Global is developing a new Alpha-1 Advocacy Pathway

Advocacy and policy can improve diagnosis and treatment of Alpha-1 patients. In order to encourage and facilitate Alpha-1 patients advocacy efforts, Alpha-1 Global has started …

Read More

The Patient Perspective of Alpha-1 Antitrypsin Deficiency: Disease Burden and Unmet Needs

The European Respiratory Society has recently published their latest article of Breathe, a clinical educational publication, which features a story centered on the lives of …

Read More

Long Harbour man is in a deadly waiting game with Newfoundland and Labrador government over treatment for rare disease

Alpha-1 antitrypsin deficiency means Chris Williams has grim prospects without replacement therapy the province’s drug plan won’t cover LONG HARBOUR, N.L. — Chris Williams’ life has …

Read More

Alpha-1 Global creates a new Alpha-1 Advocacy Pathway

We are pleased to announce that over the coming months we will work on updating and restructuring the Alpha-1 Advocacy Pathway on the website of …

Read More

Chronicles From the Front

Nuccia Gatta, President of Alfa-1-At Onlus Italia, has authored the following communication on the current situation in Italy for Alpha-1 patients following the COVID-19 outbreak …

Read More

2019 Novel Coronavirus (2019-nCoV) and Plasma Protein Therapies

Recent international reports have highlighted the emergence of a new coronavirus in Wuhan, Hubei Province, China. The 2019 Novel Coronavirus (2019-nCoV) was first identified by …

Read More

4th International Research Conference on Alpha-1 Antitrypsin & 7th Alpha-1 Global Patient Congress

The Alpha-1 Foundation hosted the 4th International Research Conference and the 7th Global Patient Congress, April 3-6, 2019, in Dubrovnik, Croatia. The Patient Congress was …

Read More

Alpha-1 Around The Globe

Click on the country flags below to learn more about country specific contact and general information, access to care, and available resources