Kiwi Alpha Co-Leaders – Marilyn Black, Val Orchard, Jim Clarke – The Need to Share
Welcome to the bottom of the world and the Alpha-1 Association New Zealand group. In New Zealand we do not have an individual leader but …
Read MoreOur mission is to develop a collaborative global network of Alpha-1 patient leaders, physicians, and researchers, to increase awareness, detection, and access to care for Alphas around the world.
Welcome to the bottom of the world and the Alpha-1 Association New Zealand group. In New Zealand we do not have an individual leader but …
Read MoreMariano Pastor (Madrid, Spain) has been the president of the Spanish Alpha-1 Association since 2011. He was diagnosed with severe COPD in 1996, at the …
Read MoreRobert Durlik (Warsaw, Poland) is this Issue’s Alpha-1 Leader in Action. He knows full well the challenges and commitment that is required to bring about …
Read MoreAlpha1-Austria was founded in 2004 by Walter Berger, his wife Christa and his brother Alois Berger; both brothers were Alpha-1 patients, type ZZ. All three …
Read MoreCristina Barbiero from Rome, Italy, is our Alpha-1 Leader in Action for this issue. She is intimately familiar with Alpha-1 through its profound effects to …
Read MoreHello, I would like to introduce myself, my name is Richard Lovrich and I am the leader of the newly formed New York Capital Region …
Read MoreFor Heleen Groen of Alpha-1 Netherlands 2016 was a remarkable year. Her health improved, she launched the Dutch Alpha-1 Foundation, established a Medical Advisory Board, …
Read MoreAbout 15 years ago, breathing became more and more difficult for Renate Shashoua. Mountain walks, folk costume dancing, gardening and even housework became more tedious. …
Read MoreAt the early age of five Karen Skålvoll started out as an athlete, with disciplines in swimming and horse riding. Eventually she also took up …
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