Alpha 1 Global

Our mission is to develop a collaborative global network of Alpha-1 patient leaders, physicians, and researchers, to increase awareness, detection, and access to care for Alphas around the world.

Alpha Stories

Kiwi Alpha Co-Leaders – Marilyn Black, Val Orchard, Jim Clarke – The Need to Share

Welcome to the bottom of the world and the Alpha-1 Association New Zealand group. In New Zealand we do not have an individual leader but …

Read More

Mariano Pastor – The Unifying Fight of Alpha-1

Mariano Pastor (Madrid, Spain) has been the president of the Spanish Alpha-1 Association since 2011. He was diagnosed with severe COPD in 1996, at the …

Read More

Robert Durlik – Finding Time to Impact His Community

Robert Durlik (Warsaw, Poland) is this Issue’s Alpha-1 Leader in Action. He knows full well the challenges and commitment that is required to bring about …

Read More

Ella Geiblinger – Making a Difference Through Action

Alpha1-Austria was founded in 2004 by Walter Berger, his wife Christa and his brother Alois Berger; both brothers were Alpha-1 patients, type ZZ. All three …

Read More

Cristina Barbiero, Alpha-1 Leader In Action: Carrying On A Legacy

Cristina Barbiero from Rome, Italy, is our Alpha-1 Leader in Action for this issue. She is intimately familiar with Alpha-1 through its profound effects to …

Read More

Richard Lovrich, Alpha-1 Leader In Action: Don’t Wait To Improve The World

Hello, I would like to introduce myself, my name is Richard Lovrich and I am the leader of the newly formed New York Capital Region …

Read More

Heleen Groen, Alpha-1 Leader In Action: The Difference A Year Makes

For Heleen Groen of Alpha-1 Netherlands 2016 was a remarkable year. Her health improved, she launched the Dutch Alpha-1 Foundation, established a Medical Advisory Board, …

Read More

Renate Shashoua, Alpha-1 Leader In Action: In Search Of Other Alphas

About 15 years ago, breathing became more and more difficult for Renate Shashoua. Mountain walks, folk costume dancing, gardening and even housework became more tedious. …

Read More

Karen Skålvoll, Alpha-1 Leader In Action: The Unstoppable Athlete

At the early age of five Karen Skålvoll started out as an athlete, with disciplines in swimming and horse riding. Eventually she also took up …

Read More

Alpha-1 Around The Globe

Click on the country flags below to learn more about country specific contact and general information, access to care, and available resources

Join Our Newsletter

Subscribe to stay in touch with the latest in Alpha-1 Global