Alpha 1 Global


Welcome to the Alpha-1 Canada page.

Please visit our web site at to learn about Alpha-1 antitrypsin deficiency and the resources available to Canadians.

If you live in Canada – and even if you don’t – please check out our many resources like our blog and newsletter that keep you informed about the latest research on Alpha-1; our support groups where you can meet others who know what you are going through; and our on-line and in person educational events.

Alpha-1 Canada’s mission is to provide information, education and support to Canadians affected by alpha-1 antitrypsin deficiency; inform and educate the medical community about alpha-1 antitrypsin deficiency; and generate broad awareness about this rare hereditary disease.

We are an inspired, patient and healthcare focused, national, charitable organization. Our Board of Directors and members of our well-regarded Medical Advisory Board represent all regions of this great country. They and our staff are dedicated and deeply committed to improving the quality of life for Alpha-1 patients and of course to finding a cure that will eliminate this disease and the hardships it causes.

Your involvement in Alpha-1 Canada and this global project is of great value to us and will also be of great value to you. Welcome to the Alpha-1 Community.

Angela Diano
Executive Director, Alpha-1 Canada

Contact Information

Patient Representative:

Angela Diano, Executive Director, Alpha-1 Canada

Jessica Cool




Physician Representative:

Dr. Ken Chapman
Alpha-1 Canadian Registry

Dr. David Wong

Access To Care

Are free Alpha-1 tests available?   Yescanada

Are Alpha-1 serum level tests available?   Yes

Are Alpha-1 genotyping tests available?  Yes

Are Alpha-1 phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Prolastin-C

How is augmentation therapy administered?   Administered by a medical professional in a home setting or community infusion clinic

How is augmentation therapy reimbursed?   Public health insurance, private health insurance, partially reimbursed, or not reimbursed

Are Alpha-1 specialists or care treatment centers available?   Yes

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available by a trained counselor?   Yes

Does your country have a patient registered charity or NGO (non-government organisation)?   Yes

The following imaging tests are available to Alpha-1 patients: CT Imaging, liver ultrasounds, liver fibroscan, liver biopsy 

Does your country have a national Alpha-1 registry?: Yes

English Resources





Les Informations

L’Alpha-1 Foundation met à vorte disposition en langue française les informations suivantes:


AlphaNet’s Skinny Little Reference Guides sont disponibles en allemand, espagnol, portugais et français via la liaison suivante:

Alpha-1 Around The Globe

Click on the country flags below to learn more about country specific contact and general information, access to care, and available resources

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