Alpha-1 Foundation Scientific, Clinical Directors Edit Book on Alpha-1 for Clinicians and Researchers


Published on January 12th, 2016

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A new book edited by two prominent Alpha-1 experts explores the causes and symptoms of the condition, and highlights the role of healthcare organizations in providing treatment.

Geared toward pulmonary clinicians and scientists, “Alpha-1 Antitrypsin: Role in Health and Disease,” is edited by Adam Wanner, MD, the Alpha-1 Foundation’s scientific director, and Robert Sandhaus, MD, PhD, clinical director of the Foundation and a medical director of AlphaNet.

Adam Wanner, MD (Photo)

“This book provides a revealing analysis of Alpha-1 lung and liver disease that will enlighten everyone from the layman to the greatest scientific minds about this genetic condition,” said John Walsh, co-founder and CEO of the Alpha-1 Foundation, who contributed a chapter to the book. “Edited by two of the most knowledgeable Alpha-1 doctors in the world, the book offers an insightful look at the causes and symptoms of Alpha-1, as well as the effectiveness and limitations of treatments that are currently available. Additionally, it underscores the crucial need for more research.”

The book discusses the biology of the alpha-1 protein, as well as diagnosis and treatment of Alpha-1 Antitrypsin Deficiency and its associated diseases, plus several that are not usually associated with Alpha-1.

Among the chapters are “Lung Disease and Alpha-1 Antitrypsin Deficiency” by Sandhaus, “Alpha-1 Antitrypsin as a Therapeutic Agent for Conditions not Associated with Alpha-1 Antitrypsin Deficiency” by Wanner, and “The Alpha-1 Constellation of Voluntary Health Organizations as a Paradigm for Confronting Rare Diseases,” by Walsh.

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(This article was published and provided by the Alpha-1 Foundation)

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