Welcome to the New Zealand Alpha-1 page.
To visit our website please click on www.alpha1.org.nz and find information about Alpha-1 antitrypsin deficiency.
Alpha-1 Association New Zealand was re-established in 2013 with the purpose to raise awareness of this disease and to help alphas and their families to have access to information and to the best treatment possible. We would like to invite you to share your knowledge and your personal experience on the discussion platforms available here. If you are unable to participate in English, you can email us directly at mandblack@gmail.com or valjim@actrix.co.nz. and we will coordinate with you the best way for you to participate.
Your involvement in this project is of great value to us and to all the alpha-1 global community.
Thank you,
Marilyn Black & Jim Clarke
Alpha-1 New Zealand
Patient Representative:
Marilyn Black
mandblack@gmail.com
www.alpha1.org.nz
Jim Clarke
valjim@actrix.co.nz
www.alpha1.org.nz
Are free A-1 tests available? Yes
Are serum level tests available? Yes
Are genotyping tests available? Yes
Are phenotyping or pi-typing tests available? Not known
Is augmentation therapy available? No
Are A-1 treatment centers available? No
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes
EDUCATIONAL
HEALTHCARE PROVIDER
RESEARCH
ADVOCACY
