Alpha 1 Global

New Zealand

Welcome to the New Zealand Alpha-1 page.

To visit our website please click on and find information about Alpha-1 antitrypsin deficiency.

Alpha-1 Association New Zealand was re-established in 2013 with the purpose to raise awareness of this disease and to help alphas and their families to have access to information and to the best treatment possible. We would like to invite you to share your knowledge and your personal experience on the discussion platforms available here. If you are unable to participate in English, you can email us directly at or and we will coordinate with you the best way for you to participate.

Your involvement in this project is of great value to us and to all the alpha-1 global community.

Thank you,

Marilyn Black & Jim Clarke
Alpha-1 New Zealand

Contact Information

Patient Representative:

Marilyn Black

Jim Clarke


Access To Care

Are free A-1 tests available?   Yesnew-zealand

Are serum level tests available?   Yes

Are genotyping tests available?  Yes

Are phenotyping or pi-typing tests available?   Not known

Is augmentation therapy available?   No

Are A-1 treatment centers available?   No

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   Yes






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