Dia daoibh a chairde agus céad míle fáilte roimh chách chuig suíomh idirlínn Alpha One Foundation Éireann.
Buail isteach ar www.alpha1.ie/ chun eolas a fháil ar Alpha-1. Tá súil againn do dtiocfaidh sibh ar ais go minic.
Hello friends and welcome to the Alpha One Foundation Ireland website. Visit www.alpha1.ie/ to find information on Alpha-1. We hope you visit again.
Thanks,
Tomás Carroll
Alpha One Foundation Ireland
To learn more about Alpha-1 and how it specifically affects the citizens of Ireland, please view the “What Is Alpha-1?” below.
Eolas Teagmhála
Ionadaí Othair:
Geraldine Kelly / Foundation CEO
geraldinekelly@rcsi.ie
Tomás Carroll /Alpha-1 Foundation Ireland
tcarroll@rcsi.ie
Ionadaí Physician:
Professor Noel G. McElvaney, MD
gmclvaney@rcsi.ie
Beaumont Hospital
Professor John Ryan
hepatologyadmin@beaumont.ie
Beaumont Hospital
Are free Alpha-1 tests available? Yes
Are Alpha-1 serum level tests available? Yes
Are Alpha-1 genotyping tests available? Yes
Are phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? No
Which augmentation therapy products are available? Not available
How is augmentation therapy reimbursed? Not reimbursed
Are Alpha-1 specialists or care treatment centers available? Yes
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available by a trained counselor? Unavailable
Does your country have an Alpha-1 patient registered charity or NGO (non-government organisation)? Yes
The following imaging tests are available to Alpha-1 patients: CT Imaging, Liver Ultrasound, Liver Fibroscan, Liver Biopsy
Does your country have a national Alpha-1 registry? If you are in Europe, does your country have a national registry apart from EARCO? Yes
