Political Discussions on Improving Care for Alpha-1 Patients
To mark the 2021 European Alpha-1 Awareness Day, Alpha-1 Global is organizing, in collaboration with Member of the European Parliament Isabel Wiseler-Lima (EPP, Luxembourg), a political discussion on the topic of Improving Care for Alpha-1 patients. The event will take place virtually on 23 April from 14:00 to 15:30 CEST.
The COVID-19 pandemic has underlined existing healthcare challenges, even more so for vulnerable populations such as Alpha-1 patients. In this context, the event will bring together key stakeholders from national and EU level and elaborate on how the specificities of the Alpha-1 patient community could be considered in different European Union (EU) policies currently being discussed. With EU institutions, constantly looking into how to improve the lives of rare disease patients, this political discussion would offer the opportunity to examine Alpha-1’s perspective.
Through the interventions from the patient and the healthcare professionals’ communities, an emphasis will be put on what aspects can be improved to address existing problems for this patient population.