4th International Research Conference on Alpha-1 Antitrypsin and 7th Alpha-1 Global Patient Congress


Published on November 8th, 2018

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Hosted by the Alpha-1 Foundation 


International Research Conference (3-4 April, 2019)

The 4th International Research Conference on Alpha-1 Antitrypsin will take place on Wednesday and Thursday, 3-4 April. This is a meeting for invited researchers and discussants, yet open to any observers interested in Alpha-1 research. On Wednesday, the program will take place from 14:00hrs to 17:00hrs and on Thursday from 9:00hrs to 17:00hrs. The Research Conference will end with a reception and dinner for Research Conference participants and Patient Congress participants.

 

Global Patient Congress (5-6 April, 2019)

The 7th Alpha-1 Global Patient Congress will start on Thursday evening, 4 April, with a welcome reception and networking dinner where Alpha-1 patients, physicians and researchers can interact. On Friday, the program will take place from 9:00hrs to 17:00hrs and on Saturday from 9:00hrs to 16:00hrs. 

 

Event Registration

Event registration is now open. Patients and healthcare providers may register at the link below.  Industry registrants, please contact the Alpha-1 Foundation (see note below).


Registration Fees for Attendance at Both Events (3-6 April)

PATIENTS & FAMILY/FRIENDS
Early Registration: 1 November – 15 January / $319
16 January – 4 April / $399

PHYSICIANS & RESEARCHERS
Early Registration: 1 November – 15 January / $670
16 January – 4 April / $770

INDUSTRY REGISTRANTS: All individuals employed by or representing industry companies who wish to register, please contact Angela McBride:  amcbride@alpha1.org (+1.305.567.9888 ext. 233)


 
 


International Research Conference Fees (3-4 April)

PATIENTS & FAMILY/FRIENDS
Early Registration: 1 November – 15 January / $179
16 January – 4 April / $229

PHYSICIANS & RESEARCHERS
Early Registration: 1 November – 15 January / $335
16 January – 4 April / $385

INDUSTRY REGISTRANTS: All individuals employed by or representing industry companies who wish to register, please contact Angela McBride:  amcbride@alpha1.org (+1.305.567.9888 ext. 233)


 
 


Global Patient Congress Fees (5-6 April)

PATIENTS & FAMILY/FRIENDS
Early Registration: 1 November – 15 January / $169
16 January – 4 April / $219

PHYSICIANS & RESEARCHERS
Early Registration: 1 November – 15 January / $335
16 January – 4 April / $385

INDUSTRY REGISTRANTS: All individuals employed by or representing industry companies who wish to register, please contact Angela McBride:  amcbride@alpha1.org (+1.305.567.9888 ext. 233)


 
 


Hotel & Reservations

Sheraton Dubrovnik Riviera Hotel
Šetalište dr. F. Tuđmana 17-20207
Srebreno, Mlini, Croatia
+385 (0)20 601 500

 

 

Just a few minutes drive from the beauty and bustle of the World Heritage Site of Dubrovnik, lies the new Sheraton Dubrovnik Riviera Hotel, an oasis of calm and an appropriate location for international conferences.

Hotel Reservations can be made directly to the hotel in euros.

  • Single Occupancy Room: 100€
  • Double Occupancy Room: 110€

These special room rates will be available 3 days prior and 3 days after the event dates; subject to availability of guest rooms at the time of your reservation.

For this special event rate, please use the following link: Sheraton Dubrovnik Riviera Hotel 

General Event Information

OFFICIAL LANGUAGE & TRANSLATION: The official language of the Patient Congress is English.

OXYGEN THERAPY: For any Alphas with decreased lung capacity; please indicate on your registration form if you have specific oxygen needs, so we can make the appropriate arrangements for you.

PERFUMES: All Congress attendees are asked to refrain from wearing perfumes or colognes as these can trigger serious breathing difficulties for some Alphas.

INSURANCE: Congress organisers cannot accept liability for personal injuries or for loss or damage to property belonging to Congress participants during or as a result of the event.

FITNESS CENTER & SPA: Each hotel room guest receives complimentary access to the fitness center and  spa (excluding treatments).

 

 

Travel Information

AIR TRAVEL: Please use Dubrovnik Airport (DBV) as your air travel destination. From the airport to the hotel you can take a one-way taxi (35€) or Uber (12-15€).

INTERNATIONAL TRAVEL WITH OXYGEN: If you are traveling by air using oxygen, please familiarise yourself with the regulations of the airlines you are flying with. Some guidelines vary per airline, so be prepared.

ELF & ERS have created a Factsheet for air travelers with lung conditions. This 6-page document addresses: things you should consider when planning a trip, and tips on keeping well while you are abroad. The Factsheet is available in 12 languages. (Select your language at the bottom of the page then click on the document titled Air Travel When You Have A Lung Condition.)

ALPHA-1 TRAVEL CONSULTANT: If you need travel assistance (from anywhere in the world), please contact:

Mary Trog
Executive Travel (an Uniglobe LLC Affiliate)
Tel: +1 615 792 7552 or +1 866-800-5258 (toll free w/in the USA)
Fax: +1 615 792 7557
mary.executivetravel@outlook.com

MEDICATION: Travel Reminder: please don’t place daily medication in your suitcase, but keep it in your hand luggage at all times, in case your luggage gets lost.

Research Conference Program

Prior to the Patient Congress, the 4th International Research Conference on Alpha-1 Antitrypsin will take place on 3-4 April. This is a meeting for invited researchers and discussants, yet open to any observers interested in Alpha-1 Antitrypsin research. A Conference Program will be made available before the end of 2018.

Patient Congress Program
 

During this 7th Alpha-1 Global Patient Congress you will:

  • Learn about updates on progress made within the Global Alpha-1 community since 2017 Congress
  • Exchange ideas and experiences with others in the Alpha-1 community and leaders from around the world
  • Interact with Alpha-1 physicians and researchers during the welcome reception and dinner on Thursday, 5 April
  • Review strategies and tools for advocacy by region
  • Help develop a 2019-2021 call to action for the Global Alpha-1 community

A provisional Congress agenda will be made available before the end of 2018.


A Big Thank You to the Alpha-1 Global Presenting Sponsors!

CSL Behring   •   Grifols   

   

 

 

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