European Alpha-1 Research Collaboration – EARCO
A European Alpha-1 Research Collaboration (EARCO) has been formed to build a network of researchers and clinicians across Europe to improve research and treatment of Alpha-1 Antitrypsin Deficiency.
Marion Wilkens (Alpha-1 Germany) and Karen O’Hara (Alpha-1 Support Group UK & Alpha-1 Global representative) participate as patient representatives.
EARCO will conduct two surveys before the end of 2018: one for Health Care Professionals and one for Patients. The aim of these surveys is to reach a consensus on the research priorities from both perspectives.
Results from the surveys and other information will be announced once it has been published and made available by EARCO.