European Alpha-1 Research Collaboration – EARCO

Published on October 5th, 2018

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A European Alpha-1 Research Collaboration (EARCO) has been formed to build a network of researchers and clinicians across Europe to improve research and treatment of Alpha-1 Antitrypsin Deficiency.

Marion Wilkens (Alpha-1 Germany) and Karen O’Hara (Alpha-1 Support Group UK & Alpha-1 Global representative) participate as patient representatives.

EARCO will conduct two surveys before the end of 2018: one for Health Care Professionals and one for Patients. The aim of these surveys is to reach a consensus on the research priorities from both perspectives.

Results from the surveys and other information will be announced once it has been published and made available by EARCO.

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