Welcome to the US Alpha-1 page.
We are in a very exciting time! The membership of the Alpha-1 Association and the Boards of Directors of both the Alpha-1 Association and Alpha-1 Foundation have voted to merge the two organizations. As of July 1, 2014, the activities from both organizations will be under the direction of the Alpha-1 Foundation. Each of the programs that serve our community will move forward and continue to positively impact the quality of life of people affected by Alpha-1.
The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and excited to see the accomplishments that an informed, empowered and engaged patient community will make. We welcome you to visit our website at www.alpha1.org and ask for your patience as we optimize the site design and content.
Most importantly, we look forward to an open exchange on this global discussion platform and the successes that your shared knowledge, questions, experiences and ideas will create and grow.
Sincere regards,
Karen L. Erickson
Associate Executive Director, Community Engagement
Patient Representative:
Karen Erickson
kerickson@alpha1.org
www.alpha1.org
Physician Representative:
Not Available
Are free A-1 tests available? Yes
Are serum level tests available? Yes
Are genotyping tests available? Not known
Are phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? Yes
Which augmentation therapy products are available? Prolastin-C, Zemaira, Aralast
How is augmentation therapy reimbursed? Public and private health insurance
Are A-1 treatment centers available? Yes
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes
EDUCATIONAL
HEALTHCARE PROVIDER
RESEARCH
ADVOCACY
