Welcome to the US Alpha-1 page.
Alpha-1 Global is a program of the Alpha-1 Foundation. Alpha-1 Global’s mission is to develop a collaborative global network of Alpha-1 patient leaders, physicians, and researchers, to increase awareness, detection, and access to care for Alphas around the world
The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and excited to see the accomplishments that an informed, empowered and engaged patient community will make. We welcome you to visit our website at www.alpha1.org and ask for your patience as we optimize the site design and content.
Most importantly, we look forward to an open exchange on this global discussion platform and the successes that your shared knowledge, questions, experiences and ideas will create and grow.
Sincere regards,
Randel Plant
Alpha-1 Global Director
Patient Representative:
Randel Plant
rplant@alpha1.org
www.alpha1.org
Physician Representative:
Robert A. Sandhaus, MD, PhD, FCCP
Contact Randel Plant, rplant@alpha1.org
Are free A-1 tests available? Yes
Are serum level tests available? Yes
Are genotyping tests available? Not known
Are phenotyping or pi-typing tests available? Yes
Is augmentation therapy available? Yes
Which augmentation therapy products are available? Prolastin-C, Zemaira, Aralast
How is augmentation therapy reimbursed? Public and private health insurance
Are A-1 treatment centers available? Yes
Is supplemental oxygen available? Yes
Are respiratory medications available? Yes
Is pulmonary rehabilitation available? Yes
Is Genetic counseling available? Yes
EDUCATIONAL
HEALTHCARE PROVIDER
RESEARCH
ADVOCACY
