Alpha 1 Global

United States


Welcome to the US Alpha-1 page.

Alpha-1 Global is a program of the Alpha-1 Foundation.  Alpha-1 Global’s mission is to develop a collaborative global network of Alpha-1 patient leaders, physicians, and researchers, to increase awareness, detection, and access to care for Alphas around the world

The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and excited to see the accomplishments that an informed, empowered and engaged patient community will make. We welcome you to visit our website at www.alpha1.org and ask for your patience as we optimize the site design and content.

Most importantly, we look forward to an open exchange on this global discussion platform and the successes that your shared knowledge, questions, experiences and ideas will create and grow.

 

Sincere regards,
Randel Plant
Alpha-1 Global Director

Contact Information

Patient Representative:

Randel Plant
rplant@alpha1.org
www.alpha1.org

 

 

 

Physician Representative:

Robert A. Sandhaus, MD, PhD, FCCP

Contact Randel Plant, rplant@alpha1.org

Access to care

Are free A-1 tests available?   Yesunited-states-of-america

Are serum level tests available?   Yes

Are genotyping tests available?   Not known

Are phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Prolastin-C, Zemaira, Aralast

How is augmentation therapy reimbursed?   Public and private health insurance

Are A-1 treatment centers available?   Yes

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   Yes

Resources

EDUCATIONAL





HEALTHCARE PROVIDER



RESEARCH



ADVOCACY




Alpha-1 Around The Globe

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