Alpha 1 Global

Our mission is to develop a collaborative global network of Alpha-1 patient leaders, physicians, and researchers, to increase awareness, detection, and access to care for Alphas around the world.

Resources


All resources on this page are available for your use in English and are grouped into the following categories: Education, Healthcare Providers, Research and Advocacy.  You may download a copy and print them at your pleasure.

Resources which are available in other languages are made available on each Country Page. These Country Pages will provide local access to care, contact, resources and general information; please click on your country flag at the bottom of this page.

Educational


Bibliography

The following link offers a list of books about Alpha-1 Antitrypsin Deficiency Disorder; recommend by the Alpha-1 Foundation (USA):  Bibliography

HEALTHCARE PROVIDER
RESEARCH
ADVOCACY

ALPHA-1 GLOBAL TOOLKIT

Advocacy Toolkit

A special Alpha-1 Advocacy Toolkit is developed to help mobilize Alpha-1 communities in their efforts to improve access to care, including augmentation therapy. This document aims to assist you to build a successful advocacy strategy, including tools to engage and educate decision makers in your country or region. Alpha-1 leaders must decide which recommendations are relevant given the political, social and cultural context in their particular country, and adapt the information for use in their own language and situation.

The toolkit is available in English, French, German, Italian, Portuguese, Romanian, and Spanish.

 

 

 

Alpha-1 Around The Globe

Click on the country flags below to learn more about country specific contact and general information, access to care, and available resources

Join Our Newsletter

Subscribe to stay in touch with the latest in Alpha-1 Global