Alpha 1 Global

Our mission is to develop a collaborative global network of Alpha-1 patient leaders, physicians, and researchers, to increase awareness, detection, and access to care for Alphas around the world.


All resources on this page are available for your use in English and are grouped into the following categories: Education, Healthcare Providers, Research and Advocacy.  You may download a copy and print them at your pleasure.

Resources which are available in other languages are made available on each Country Page. These Country Pages will provide local access to care, contact, resources and general information; please click on your country flag at the bottom of this page.



The following link offers a list of books about Alpha-1 Antitrypsin Deficiency Disorder; recommend by the Alpha-1 Foundation (USA):  Bibliography



Advocacy Toolkit

A special Alpha-1 Advocacy Toolkit is developed to help mobilize Alpha-1 communities in their efforts to improve access to care, including augmentation therapy. This document aims to assist you to build a successful advocacy strategy, including tools to engage and educate decision makers in your country or region. Alpha-1 leaders must decide which recommendations are relevant given the political, social and cultural context in their particular country, and adapt the information for use in their own language and situation.

The toolkit is available in English, French, German, Italian, Portuguese, Romanian, and Spanish.



Alpha-1 Awareness Infographic

This Alpha-1 awareness infographic was developed by experts and it aims to help spreading awareness and knowledge about the condition, including sign and symptoms, testing for Alpha-1, continuous monitoring and follow-ups, key facts and next steps. This document can be downloaded and shared with anyone for a better understanding of Alpha-1 Antitrypsin Deficiency. No changes to the content is permitted.

Disclaimer: The Infographic is approved for EU use only. Should you want to adapt or use the infographic outside the EU, please contact Randel Plant at

This infographic is available in the following languages: DanishDutchFrenchGermanGreekItalian, Polish, Swedish


Alpha-1 Around The Globe

Click on the country flags below to learn more about country specific contact and general information, access to care, and available resources

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