Alpha 1 Global

Our mission is to develop a collaborative global network of Alpha-1 patient leaders, physicians, and researchers, to increase awareness, detection, and access to care for Alphas around the world.

News

Researchers Show off “Gene Editing” Technique to Alpha-1 Support Group

Researchers are looking for a way to genetically “edit” out Alpha-1 in much the same way that a writer corrects misspelled words, or a film …

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Issue #5 Alpha-1 Global Community eNews

To view Issue #5 of the Alpha-1 Global Community eNews, click here.

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Foundation awards record $1.9 million to 14 grant recipients

The Alpha-1 Foundation announced its 2016 grant awardees on Monday, May 16 during a dinner reception at the American Thoracic Society (ATS) International Conference in …

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COPD Foundation Announces New Leadership; Grace Anne Dorney Koppel Named President and Craig Kephart Becomes CEO

The COPD Foundation, the only U.S. healthcare not-for-profit solely dedicated to preventing and curing chronic obstructive pulmonary disease (COPD) while working to improve therapies, today …

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TAP Chief Discusses Research at Gene and Cell Therapy Conference

ean-Marc Quach, executive director of The Alpha-1 Project (TAP), on Wednesday discussed the research efforts and infrastructure that the Alpha-1 Foundation has built to advance both …

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Alpha-1 Foundation Names Henry Moehring President and CEO; Walsh Becomes Founder and Chief Visionary Officer

Henry Moehring has been named President and CEO of the Alpha-1 Foundation. John Walsh, who co-founded the Foundation in 1995 and has been President and …

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ATS Conference to Feature Alpha-1 Q&A Session

Two prominent Alpha-1 experts will discuss chronic obstructive pulmonary disease (COPD) at the American Thoracic Society’s annual conference, which will take place May 13-18, 2016 …

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Growing Scarcity of Liquid Oxygen Endangers Patients, Advocates Say

Alphas and others with severe breathing problems who require high-flow oxygen are increasingly finding it difficult to obtain liquid oxygen, effectively making them homebound, forcing …

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Most Doctors Unsure How to Discuss End-of-Life Care, Survey Says

Doctors know it’s important to talk with their patients about end-of-life care. But they’re finding it tough to start those conversations — and when they do, …

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Program Makes More Lungs Available for Transplant

The following article appears in the Spring 2016 edition of Alpha-1-To-One magazine, which has been mailed out for free to more than 20,000 subscribers. In …

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Alpha-1 Around The Globe

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