Alpha 1 Global

Our mission is to develop a collaborative global network of Alpha-1 patient leaders, physicians, and researchers, to increase awareness, detection, and access to care for Alphas around the world.

News

European Lung Foundation Conducts Alpha-1 Survey to Establish Future Research Priorities

The European Lung Foundation (ELF) is asking members of the Alpha-1 community for their help in identifying the challenges of care, treatment and living with …

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Alpha-1 Global Announces Launch of Alpha-1 Global Hub Centers

Alpha-1 Global is launching a program called the Alpha-1 Global Hub Centers. The goal of the program is to create 5-6 centers globally that will …

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CSL Behring Announces Grant for EU Advocacy Development

Dear EU Alpha-1 Global Partners: We are pleased to provide you information regarding CSL Behring’s announcement for Local Empowerment for Advocacy Development (LEAD) Grants available …

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CSL Behring announcement on their product Zemaira

Today, the Alpha-1 Foundation received the following communication from CSL Behring, regarding Zemaira®, their prescription drug for augmentation therapy for the treatment of Alpha-1 Antitrypsin …

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Alpha-1 Global mourns the loss of Guillermo Menga, MD

It is with a heavy heart that the Alpha-1 Global program, at the Alpha-1 Foundation, announces the passing of Guillermo Menga, MD, director of the …

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Karen, living with Alpha-1 Antitrypsin Deficiency (Alpha-1)

I am Karen, and I am 46 years old and an elite disabled athlete. Because of my plasma therapy, I can participate in sports, run …

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4th International Research Conference on Alpha-1 Antitrypsin & 7th Alpha-1 Global Patient Congress

The Alpha-1 Foundation hosted the 4th International Research Conference and the 7th Global Patient Congress, April 3-6, 2019, in Dubrovnik, Croatia. The Patient Congress was …

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Respreeza announcement for Europe

Patients in Europe (Respreeza®) might experience a disruption of Respreeza® in the coming days. Respreeza® is CSL Behring’s prescription drug for the treatment of Alpha-1 …

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Alfa1 Espana Receives “Best 2018 Respiratory Patient Project”

A hearty “Congratulations” to Alfa 1 España  for “Alfas en Camino” being selected as the Best 2018 Respiratory Patient Project by Separ De Pacientes Respiratorios! …

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Grifols Affirms Commitment to Patients During Alpha-1 Awareness Month

November is Alpha-1 Awareness Month, and Grifols is proud to share its efforts to further increase Alpha-1 diagnosis rates and expand treatment options. Alpha-1 awareness matters. …

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Alpha-1 Around The Globe

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