2022 Improving Care for Alpha-1 Patients Global Webinar
In anticipation of the 2022 European Alpha-1 Awareness Day on Monday, 25 April 2022, Alpha-1 Global hosted the Improving Care for Alpha-1 Patients webinar. This …
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Challenges to Early Diagnosis of Alpha-1 and How to Overcome Them
Proper and timely diagnosis – the first stumbling block for patients suffering from rare diseases The first step before treatment for any disease or illness …
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The EU’s Cross-border healthcare directive and you – an Alpha-1 patient’s chance for a better life
Cross-border healthcare in the European Union – what’s it all about? Every patient suffering from a rare disease is painfully familiar with the struggle of …
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Alpha-1 Global is developing a new Alpha-1 Advocacy Pathway
Advocacy and policy can improve diagnosis and treatment of Alpha-1 patients. In order to encourage and facilitate Alpha-1 patients advocacy efforts, Alpha-1 Global has started …
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The Patient Perspective of Alpha-1 Antitrypsin Deficiency: Disease Burden and Unmet Needs
The European Respiratory Society has recently published their latest article of Breathe, a clinical educational publication, which features a story centered on the lives of …
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Long Harbour man is in a deadly waiting game with Newfoundland and Labrador government over treatment for rare disease
Alpha-1 antitrypsin deficiency means Chris Williams has grim prospects without replacement therapy the province’s drug plan won’t cover LONG HARBOUR, N.L. — Chris Williams’ life has …
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RESPREEZA® Alpha-1 Proteinase Inhibitor (Human) Update
The following is a statement from CSL Behring regarding RESPREEZA® in the European Union: February 8, 2021 – As a precautionary measure, CSL Behring has …
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CSL Behring Announces EU LEAD Grants for Advocacy Development
Dear EU Alpha-1 Global Partners, We are pleased to provide you information regarding CSL Behring’s announcement for Local Empowerment for Advocacy Development (LEAD) Grants available …
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PPTA urges decisive action in Europe to increase plasma donations
Shortfalls in donations due to COVID-19 could threaten patient access Brussels, (October 6, 2020) — International Plasma Awareness Week (IPAW) takes on particular urgency this …
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PatientAdvocacy.Academy seeks Young Alpha-1 Patient Leaders for Exciting Advocacy Program
The PatientAdvocacy.Academy, an online learning platform designed for patient leaders in the field of plasma derived therapies, is looking for EU Alpha-1 patient leaders to …
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