Alpha 1 Global

Our mission is to develop a collaborative global network of Alpha-1 patient leaders, physicians, and researchers, to increase awareness, detection, and access to care for Alphas around the world.

News

The patient perspective of alpha-1 antitrypsin deficiency: disease burden and unmet needs

The European Respiratory Society has recently published their latest article of Breathe, a clinical educational publication, which features a story centered on the lives of …

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Long Harbour man is in a deadly waiting game with Newfoundland and Labrador government over treatment for rare disease

Alpha-1 antitrypsin deficiency means Chris Williams has grim prospects without replacement therapy the province’s drug plan won’t cover LONG HARBOUR, N.L. — Chris Williams’ life has …

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RESPREEZA® Alpha-1 Proteinase Inhibitor (Human) Update

The following is a statement from CSL Behring regarding RESPREEZA® in the European Union: February 8, 2021 – As a precautionary measure, CSL Behring has …

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CSL Behring Announces EU LEAD Grants for Advocacy Development

Dear EU Alpha-1 Global Partners, We are pleased to provide you information regarding CSL Behring’s announcement for Local Empowerment for Advocacy Development (LEAD) Grants available …

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PPTA urges decisive action in Europe to increase plasma donations

Shortfalls in donations due to COVID-19 could threaten patient access Brussels, (October 6, 2020) — International Plasma Awareness Week (IPAW) takes on particular urgency this …

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PatientAdvocacy.Academy seeks Young Alpha-1 Patient Leaders for Exciting Advocacy Program

The PatientAdvocacy.Academy, an online learning platform designed for patient leaders in the field of plasma derived therapies, is looking for EU Alpha-1 patient leaders to …

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Future access to Plasma Derived Medicinal Products: Patient Centred Decision Making

29 September 2020, 15:00 – 16:30 hrs Online event co-organised with the support of MEP Sirpa Pietikainen (EPP, Finland) Platform of Plasma Protein Users is …

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Z Factor crosses from idea to AATD gene treatment

Z Factor, the Cambridge-based drug development company created by European life sciences-oriented venture capital company Medicxi in partnership with the University of Cambridge in 2015, …

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COVID-19 Public Policy Implications for Europe

UPDATED 12 October 2020: RPP Group, a Brussels-based public policy and advocacy consultant, has produced a monitoring service that will be disseminated regularly, providing timely …

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Publication in “Gastroenterology”: Study on Liver Involvement in mild Alpha-1 Antitrypsin Deficiency

Study on liver involvement in mild alpha-1-antitrypsin deficiency published in “Gastroenterology” The Alpha1-Liver Team from Aachen, Germany, which coordinates the European study group for alpha1-antitrypsin …

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Alpha-1 Around The Globe

Click on the country flags below to learn more about country specific contact and general information, access to care, and available resources