Alpha 1 Global

Our mission is to develop a collaborative global network of Alpha-1 patient leaders, physicians, and researchers, to increase awareness, detection, and access to care for Alphas around the world.

News

Alpha-1 UK Support Group – 20 Years of Patient Support

  Original source:  Respiratory Disease In Practice (2017 Spring Issue)  http://www.haywardpublishing.co.uk/rdip.aspx  

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Press Release – Alpha-1 Global Patient Congress & Scientific Research Conference – 28 March, 2017

For information and interviews, contact: Leonor Perez: leonorperez@lovexair.com Tfno (+34) 64996239 Leading Patients and Researchers Meet in Lisbon to Raise Global Awareness of Alpha-1 Antitrypsin …

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Alpha-1 European Expert Group Recommendations

The Alpha-1 European Expert Group Recommendations will be released and published Wednesday, 22 March at the European Parliament in Brussels.  Updates from the event coming …

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Respiratory Visionary Leaves Legacy

By Teresa Barnes, Alpha-1 Foundation Public Policy Working Group member More than 13 years ago, a tireless visionary emerged who would change the face of …

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Alpha-1 Foundation Announces Passing of Co-Founder and Director Emeritus John W. Walsh

The Alpha-1 Foundation is deeply saddened to announce that our Co-founder and Director Emeritus John W. Walsh passed away earlier today surrounded by his loving …

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3rd Conference on European Reference Networks to Take Place 09-10 March, 2017

The 3rd Conference on European Reference Networks will take place 09-10 March, 2107, in Vilnius, Lithuania. The event will focus on the presentation of the …

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ZEMAIRA Approved for Treatment of AATD in Australia

The TGA has approved CSL Behring’s ZEMAIRA for the treatment of Alpha-1 Antitrypsin Deficiency (AATD). AATD is a hereditary condition that can severely affect a patient’s lung …

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Press Release – Alpha-1 Global Patient Congress & Scientific Research Conference – 06 March, 2017

For information and interviews, contact: Leonor Perez: leonorperez@lovexair.com Tfno (+34) 64996239   Leading patients and researchers meet in Lisbon to raise global awareness of Alpha-1 …

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Global Patient Congress and Research Conference in Lisbon to take place April 5-8

The 6th Alpha-1 Global Patient Congress and 3rd Research Conference on Alpha-1 Antitrypsin will be held April 5-8, 2017, at the InterContinental Hotel in Lisbon, …

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Alphas in Ireland Set to Lose Access to Augmentation Therapy

More than 20 people in Ireland who have severe Alpha-1 lung disease are facing the loss of “life-changing” augmentation therapy within weeks following its rejection by …

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Alpha-1 Around The Globe

Click on the country flags below to learn more about country specific contact and general information, access to care, and available resources