Alpha 1 Global

Our mission is to develop a collaborative global network of Alpha-1 patient leaders, physicians, and researchers, to increase awareness, detection, and access to care for Alphas around the world.


CSL Behring Announces EU LEAD Grants for Advocacy Development

Dear EU Alpha-1 Global Partners, We are pleased to provide you information regarding CSL Behring’s announcement for Local Empowerment for Advocacy Development (LEAD) Grants available …

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PPTA urges decisive action in Europe to increase plasma donations

Shortfalls in donations due to COVID-19 could threaten patient access Brussels, (October 6, 2020) — International Plasma Awareness Week (IPAW) takes on particular urgency this …

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PatientAdvocacy.Academy seeks Young Alpha-1 Patient Leaders for Exciting Advocacy Program

The PatientAdvocacy.Academy, an online learning platform designed for patient leaders in the field of plasma derived therapies, is looking for EU Alpha-1 patient leaders to …

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Future access to Plasma Derived Medicinal Products: Patient Centred Decision Making

29 September 2020, 15:00 – 16:30 hrs Online event co-organised with the support of MEP Sirpa Pietikainen (EPP, Finland) Platform of Plasma Protein Users is …

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Z Factor crosses from idea to AATD gene treatment

Z Factor, the Cambridge-based drug development company created by European life sciences-oriented venture capital company Medicxi in partnership with the University of Cambridge in 2015, …

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COVID-19 Public Policy Implications for Europe

UPDATED 12 October 2020: RPP Group, a Brussels-based public policy and advocacy consultant, has produced a monitoring service that will be disseminated regularly, providing timely …

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Publication in “Gastroenterology”: Study on Liver Involvement in mild Alpha-1 Antitrypsin Deficiency

Study on liver involvement in mild alpha-1-antitrypsin deficiency published in “Gastroenterology” The Alpha1-Liver Team from Aachen, Germany, which coordinates the European study group for alpha1-antitrypsin …

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Wall Street Journal: Letter to the Editor

On 3 May 2020, The Wall Street Journal published an article entitled “Researchers Explore Using Common Blood-Plasma Treatment to Fight Coronavirus.” The article  discussed the …

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2020 European Alpha-1 Awareness Day Review

25 April 2020 marked the third annual European Alpha-1 Awareness Day, a date in which those afflicted with the genetic condition Alpha-1 Antitrypsin Deficiency (AATD) …

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2020 European Alpha-1 Awareness Day

25 April 2020 will mark the third annual European Alpha-1 Awareness Day, which is dedicated to raising awareness for those with Alpha-1 Antitrypsin Deficiency. Alpha-1 …

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Alpha-1 Around The Globe

Click on the country flags below to learn more about country specific contact and general information, access to care, and available resources