Alpha 1 Global

Our mission is to develop a collaborative global network of Alpha-1 patient leaders, physicians, and researchers, to increase awareness, detection, and access to care for Alphas around the world.

News

PPTA urges decisive action in Europe to increase plasma donations

Shortfalls in donations due to COVID-19 could threaten patient access Brussels, (October 6, 2020) — International Plasma Awareness Week (IPAW) takes on particular urgency this …

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PatientAdvocacy.Academy seeks Young Alpha-1 Patient Leaders for Exciting Advocacy Program

The PatientAdvocacy.Academy, an online learning platform designed for patient leaders in the field of plasma derived therapies, is looking for EU Alpha-1 patient leaders to …

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Future access to Plasma Derived Medicinal Products: Patient Centred Decision Making

29 September 2020, 15:00 – 16:30 hrs Online event co-organised with the support of MEP Sirpa Pietikainen (EPP, Finland) Platform of Plasma Protein Users is …

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Z Factor crosses from idea to AATD gene treatment

Z Factor, the Cambridge-based drug development company created by European life sciences-oriented venture capital company Medicxi in partnership with the University of Cambridge in 2015, …

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COVID-19 Public Policy Implications for Europe

UPDATED 12 October 2020: RPP Group, a Brussels-based public policy and advocacy consultant, has produced a monitoring service that will be disseminated regularly, providing timely …

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Publication in “Gastroenterology”: Study on Liver Involvement in mild Alpha-1 Antitrypsin Deficiency

Study on liver involvement in mild alpha-1-antitrypsin deficiency published in “Gastroenterology” The Alpha1-Liver Team from Aachen, Germany, which coordinates the European study group for alpha1-antitrypsin …

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Wall Street Journal: Letter to the Editor

On 3 May 2020, The Wall Street Journal published an article entitled “Researchers Explore Using Common Blood-Plasma Treatment to Fight Coronavirus.” The article  discussed the …

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2020 European Alpha-1 Awareness Day Review

25 April 2020 marked the third annual European Alpha-1 Awareness Day, a date in which those afflicted with the genetic condition Alpha-1 Antitrypsin Deficiency (AATD) …

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2020 European Alpha-1 Awareness Day

25 April 2020 will mark the third annual European Alpha-1 Awareness Day, which is dedicated to raising awareness for those with Alpha-1 Antitrypsin Deficiency. Alpha-1 …

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Grifols Announces Formal Collaboration with US Government to Produce the First Treatment Specifically Targeting COVID-19

Barcelona, March 25, 2020 – Grifols today announces that it has entered into a formal collaboration with the United States Biomedical Advanced Research Development Authority (BARDA), …

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Alpha-1 Around The Globe

Click on the country flags below to learn more about country specific contact and general information, access to care, and available resources