Alpha 1 Global

Our mission is to develop a collaborative global network of Alpha-1 patient leaders, physicians, and researchers, to increase awareness, detection, and access to care for Alphas around the world.

Alpha Stories

The Patient Perspective of Alpha-1 Antitrypsin Deficiency: Disease Burden and Unmet Needs

The European Respiratory Society has recently published their latest article of Breathe, a clinical educational publication, which features a story centered on the lives of …

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Alpha-1-to-One Podcast: Global Alpha-1 Discussion

 In the ninth episode of the Alpha-1 Foundation’s Alpha-1-to-One podcast series, Richard Lovrich moderates a global discussion of Alpha-1 during the COVID-19 pandemic. This …

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Being an Alpha During COVID-19 Times

In recognition of the EU Alpha-1 Awareness Month 2020, Fundación LovexAir produced a video on 31 March 2020 featuring three international Alphas discussing life after …

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Chronicles From the Front

Nuccia Gatta, President of Alfa-1-At Onlus Italia, has authored the following communication on the current situation in Italy for Alpha-1 patients following the COVID-19 outbreak …

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Karen, living with Alpha-1 Antitrypsin Deficiency (Alpha-1)

I am Karen, and I am 46 years old and an elite disabled athlete. Because of my plasma therapy, I can participate in sports, run …

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Geraldine Kelly – Determined to be a Strong Voice

Alpha-1 Foundation Ireland was founded in 2001 by Professor Gerry McElvaney a renowned respiratory consultant and world expert in Alpha-1 Antitrypsin Deficiency.  The Foundation has …

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Marius Ene – Alpha-1 Leader In Action

I know my story is not a spectacular one; it’s kind of a typical story for many Alphas. If someone would have asked me ten …

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Carlos Cambon – Alpha-1 Leader in Action

Hola from Buenos Aires! My name is Carlos Cambón and I am the support group leader of Alpha-1 Argentina. I was diagnosed with Alpha-1 Antitrypsin …

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Alan Wooler – Alpha-1 Leader In Action

Alan Wooler from Bakewell, Derbyshire, United Kingdom, is our Alpha-1 Leader in Action for this issue. He and his wife Emma are intimately familiar with …

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Rabiya Taok, Alpha-1 Leader In Action: Determined and Optimistic

Prior to her sudden change in health, Rabiya (42) who lives in Lebanon, described her life as a daily adventure. She was an energetic drama …

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Alpha-1 Around The Globe

Click on the country flags below to learn more about country specific contact and general information, access to care, and available resources