Alpha 1 Global

Canada


Welcome to the Alpha-1 Canada page.

Please visit our web site at www.alpha1canada.ca to learn about Alpha-1 antitrypsin deficiency and the resources available to Canadians.

If you live in Canada – and even if you don’t – please check out our many resources like our blog and newsletter that keep you informed about the latest research on Alpha-1; our support groups where you can meet others who know what you are going through; and our on-line and in person educational events.

Alpha-1 Canada’s mission is to provide information, education and support to Canadians affected by alpha-1 antitrypsin deficiency; inform and educate the medical community about alpha-1 antitrypsin deficiency; and generate broad awareness about this rare hereditary disease.

We are an inspired, patient and healthcare focused, national, charitable organization. Our Board of Directors and members of our well-regarded Medical Advisory Board represent all regions of this great country. They and our staff are dedicated and deeply committed to improving the quality of life for Alpha-1 patients and of course to finding a cure that will eliminate this disease and the hardships it causes.

Your involvement in Alpha-1 Canada and this global project is of great value to us and will also be of great value to you. Welcome to the Alpha-1 Community.

Angela Diano
Executive Director, Alpha-1 Canada

 

Access To Care

Are free A-1 tests available?   Yescanada

Are serum level tests available?   Yes

Are genotyping tests available?   Not known

Are phenotyping or pi-typing tests available?   Yes

Is augmentation therapy available?   Yes

Which augmentation therapy products are available?   Prolastin-C

How is augmentation therapy reimbursed?   Public health insurance(in some jurisdictions) and private health insurance

Are A-1 treatment centers available?   Yes

Is supplemental oxygen available?   Yes

Are respiratory medications available?   Yes

Is pulmonary rehabilitation available?   Yes

Is Genetic counseling available?   Yes

English Resources

EDUCATIONAL





HEALTHCARE PROVIDER



RESEARCH



ADVOCACY


Les Informations

L’Alpha-1 Foundation met à vorte disposition en langue française les informations suivantes:

 

AlphaNet’s Skinny Little Reference Guides sont disponibles en allemand, espagnol, portugais et français via la liaison suivante:

Alpha-1 Around The Globe

Click on the country flags below to learn more about country specific contact and general information, access to care, and available resources

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