ALPHA-1 ADVOCACY AROUND THE WORLD
The challenges of obtaining the appropriate medical care for Alpha-1 vary by country. Many countries have already made progress in the areas of awareness, detection, health management, and access to augmentation therapy and reimbursement. While countries have different governance structures and healthcare systems that demand a unique approach to advocacy, much can be learned from the experience of Alpha-1 communities that have faced these challenges and won some hard fought battles.
Alpha-1 Global has developed an interactive platform which will assist anyone through the process of understanding advocacy and considerations in becoming an Alpha-1 Advocate. The Alpha-1 ADVOCACY Pathway offers an engaging, self-guided, online discovery experience and offers training modules for five types of advocacy involvement. Discover which advocacy type is best for you by visiting the Alpha-1 ADVOCACY Pathway.
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Alpha-1 Advocacy Webinar Presentation & Checklist
Alpha-1 Global, in collaboration with RPP Group, hosted a webinar focused on improving Alpha-1 advocacy efforts in the European Union. The presentation focused on empowering Alpha-1 patient organisations and patients to become advocates at the national and European level. The webinar guided the participants through the advocacy process, which is outlined in a checklist. This checklist, entitled the Alpha-1 National Advocacy Checklist, is based on The Alpha-1 Advocacy Pathway tool. The Alpha-1 National Advocacy Checklist outlines a four-step process to successfully identify and deliver messages to key stakeholders.
The webinar also provided helpful insights into how to develop a successful political ask, how to identify political stakeholders with similar interests, and tips on organising an activity for EU Alpha-1 Awareness Day 2020, which will take place on 25 April.
A detailed overview of the Alpha-1 Advocacy webinar was produced by RPP Group following the presentation. The report summarizes the contents of the webinar, which can be read here.
The webinar presentation and checklist can be found in the links below: