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Natasha Durant, Alpha Mom and Co-Leader of the Oregon Alpha-1 Foundation (A1F) Support Group, is helping lead the charge in […]
Read More… from Community Parade in Oregon Drives Awareness for Alpha-1
The Alpha-1 Foundation (A1F) hosted the 2025 A1F National Conference from June 6th thru June 8th in Miami, Florida. This year, A1F […]
Read More… from View Photos from 2025 A1F National Conference
We need your voice, now more than ever, to protect the Alpha-1 Community. Congress is actively debating legislation that may […]
Read More… from Alphas, Take Action Today! June 2025 Advocacy Action Alerts
OMAHA, NE — On June 28th, the Big Red Alphas hosted their second annual Ice Cream for Alpha-1 fundraiser at […]
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Stand Up for Science is circulating a letter aimed at collecting individual signatures to support the need for NIH funding. […]
The medical leadership team at the Alpha-1 Foundation has provided an updated Statement for the Alpha-1 Antitrypsin Deficiency Community: Understanding the […]
On Wednesday, May 28th, Ken Irvine, Alpha-1 Foundation Board of Director and his son, Bill Irvine hosted the annual Bettina B. Irvine Invitational Classic […]
Read More… from A1F Honors Kenneth Irvine at the 2025 Bettina B. Irvine Golf Invitational
The Alpha-1 Foundation (A1F) is proud to host the 2025 A1f National Conference from June 6th thru June 8th in Miami, Florida. […]
Read More… from The 2025 A1F National Conference Celebrates 30 Years
On Monday, May 19th, 2025, the Alpha-1 Foundation (A1F) hosted its annual A1F Grants Award Reception at the San Francisco […]
Read More… from A1F recognizes 2025 Grant Award Recipients during ATS
On Sunday, May 18, 2025, more than 100 participants gathered at the Red Devils Softball Field in Brooklyn, New York […]
Read More… from Post-Event Recap: 2nd Annual Walk in Memory of Lorraine Cimino
An exciting national effort is making it easier for patients and caregivers to participate in clinical research. The Champions for Change […]
Honoring Three Decades of Research & Collaboration The Alpha-1 Foundation is enthusiastic to join the American Thoracic Society for the […]
On May 2, 2025, the Alpha-1 community came together on the serene waters of Lake Norman, North Carolina for Cruising […]
Read More… from Cruising for a Cure: A Beautiful Night of Purpose and Progress
Richie Ramirez and his family have been proudly involved with the Alpha-1 Foundation Virtual Walk, walking under their team name, […]
FOR IMMEDIATE RELEASE MAY 5, 2025- The Alpha-1 Foundation (A1F) was recently selected as the #2 overall of the 2025 […]
Read More… from Alpha-1 Foundation selected as one of the 2025 Best Nonprofits to Work For
FOR IMMEDIATE RELEASE MAY 1, 2025- “I scream, you scream, we all scream for Ice Cream for Alpha-1”. The Alpha-1 […]
Read More… from Alpha-1 Foundation Launches New Summer Fundraising Campaign: Ice Cream for Alpha-1
The Alpha-1 Foundation (A1F) joins 30 organizations requesting Congress to cosponsor bipartisan legislation A.1406/H.R.2902, the Supplemental Oxygen Access Reform (SOAR) […]
Read More… from A1F signs-on urging Congress to cosponsor the SOAR Act
Korro Bio has completed the dosing of the first two single ascending dose cohorts in healthy adult volunteers. They continue […]
Read More… from Korro Bio provides update on progress made: KRRO-110
Exciting breakthrough in Alpha-1 research by Beam Therapeutics shows success in restoring the mutated Alpha-1 gene to normal. This correction […]
Read More… from Mutated DNA Restored to Normal in Gene Therapy Advance
The Alpha-1 Foundation (A1F) is proud to commemorate its 30th anniversary of supporting patients with Alpha-1 Antitrypsin Deficiency (Alpha-1) while […]
Read More… from The Alpha-1 Foundation Commemorates its 30th Anniversary
Many people of all ages take medications. Keeping track of when, how and why you use medications is important for […]
Read More… from Create and Keep a Medication List for Your Health
Watch her video interview here. New data from the open-label extension of the phase 2b SEQUOIA study of fazirsiran support […]
Read More… from Virginia Clark, MD: Understanding Fazirsiran’s Potential in AATD Liver Disease
The Centers for Medicare & Medicaid Services (CMS) remains committed to supporting a robust Marketplace Open Enrollment Period so millions […]
