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On May 2, 2025, the Alpha-1 community came together on the serene waters of Lake Norman, North Carolina for Cruising […]
Read More… from Cruising for a Cure: A Beautiful Night of Purpose and Progress
Richie Ramirez and his family have been proudly involved with the Alpha-1 Foundation Virtual Walk, walking under their team name, […]
FOR IMMEDIATE RELEASE MAY 5, 2025- The Alpha-1 Foundation (A1F) was recently selected as the #2 overall of the 2025 […]
Read More… from Alpha-1 Foundation selected as one of the 2025 Best Nonprofits to Work For
The Alpha-1 Foundation (A1F) joins 30 organizations requesting Congress to cosponsor bipartisan legislation A.1406/H.R.2902, the Supplemental Oxygen Access Reform (SOAR) […]
Read More… from A1F signs-on urging Congress to cosponsor the SOAR Act
Korro Bio has completed the dosing of the first two single ascending dose cohorts in healthy adult volunteers. They continue […]
Read More… from Korro Bio provides update on progress made: KRRO-110
Exciting breakthrough in Alpha-1 research by Beam Therapeutics shows success in restoring the mutated Alpha-1 gene to normal. This correction […]
Read More… from Mutated DNA Restored to Normal in Gene Therapy Advance
The Alpha-1 Foundation (A1F) is proud to commemorate its 30th anniversary of supporting patients with Alpha-1 Antitrypsin Deficiency (Alpha-1) while […]
Read More… from The Alpha-1 Foundation Commemorates its 30th Anniversary
Many people of all ages take medications. Keeping track of when, how and why you use medications is important for […]
Read More… from Create and Keep a Medication List for Your Health
Watch her video interview here. New data from the open-label extension of the phase 2b SEQUOIA study of fazirsiran support […]
Read More… from Virginia Clark, MD: Understanding Fazirsiran’s Potential in AATD Liver Disease
The Centers for Medicare & Medicaid Services (CMS) remains committed to supporting a robust Marketplace Open Enrollment Period so millions […]
December 4, 2024 The Honorable Chuck SchumerMajority LeaderUnited States Senate322 Hart Senate Office BuildingWashington, D.C. 20510 The Honorable Mitch McConnellMinority […]
Experimental Models of Alpha-1 Antitrypsin Deficiency Lung and Liver Disease The Alpha-1 Foundation joined with researchers, clinicians and industry partners […]
Read More… from 27th Gordon L. Snider (GLS) Critical Issues Workshop
In recognition of his dedicated service to our Board and Alpha-1 Community, AlphaNet is proud to honor Immediate Past Chair […]
FSR’s survey and focus group discussions revealed that a significant barrier to patients participating in clinical trials relates to concerns […]
Key takeaways from today’s press release include: CAMBRIDGE, Mass., Nov. 21, 2024 (GLOBE NEWSWIRE) — Korro Bio, Inc. (Korro) (Nasdaq: […]
Through the power of connection and collaborations, A1F is building a more informed and empowered Alpha-1 community. These efforts drive […]
Read More… from 2024 Alpha-1 Awareness Month: Week 3 Highlights
Take a deep breath. Feels good, doesn’t it? Now imagine if that breath felt like sucking air through a tiny […]
Read More… from Patty Tew shares her Alpha-1 story in the Orlando Sentinel
“The Power to Connect” continues to energize the entire Alpha-1 community during the second week of Alpha-1 Awareness month! The enthusiasm […]
Read More… from 2024 Alpha-1 Awareness Month: Week 2 Highlights
On November 8, 2024, the Centers for Medicare & Medicaid Services (CMS) released the 2025 premiums, deductibles, and coinsurance amounts […]
Read More… from 2025 Medicare Parts A & B Premiums and Deductibles
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
November 1, 2024 Vaccines remain the best public health measure to protect people from COVID-19; slow transmission; and reduce the likelihood of […]
Each year, the Alpha-1 Foundation recognizes November as Alpha-1 Awareness Month in order to raise awareness for Alpha-1 Antitrypsin Deficiency […]
Read More… from “The Power to Connect”: November is Alpha-1 Awareness Month!
Docket No. FDA-2024-N-3528 Advancing Rare Disease Therapies Through a Food and Drug Administration Rare Disease Innovation Hub; Public Meeting; Request […]
Read More… from Statement of A1F to the FDA on the Need for New Therapies for Alpha-1
Today, the U.S. Food and Drug Administration granted marketing authorization for the Healgen Rapid Check COVID-19/Flu A&B Antigen Test. The […]
